Connect with others who understand.

sign up log in
About myPHteam

Pulmonary Hypertension Awareness: How To Get Involved

Posted on November 01, 2021
Article written by
Anika Brahmbhatt

If you’re living with pulmonary hypertension (PH), you’re already aware of the impact the condition can have on your life — but chances are strong that other people in your orbit don’t know as much as they could about the disease. That’s why it’s important to raise awareness for the medical condition — particularly in November, which is Pulmonary Hypertension Awareness Month.

Raising awareness doesn’t just help other people understand your condition. Many myPHteam members have found that gaining more knowledge about the condition helps them make more informed decisions about treatments and strengthens their feelings of self-reliance.

“Since November is Pulmonary Hypertension Awareness Month, I will be making informative posts throughout the month. Keep watching! It is up to us to keep informed and pass that on to others to educate and create awareness!” shared one myPHteam member.

Start by Raising Your Own Awareness

Before you can create public awareness by sharing information with others, it’s a good idea to understand the specifics about PH. Learn more about PH’s causes, signs and symptoms, and treatment options.

Pulmonary hypertension is high blood pressure in the blood vessels that carry blood from the right side of the heart to the lungs. Pulmonary hypertension should not be confused with systemic hypertension — high blood pressure in blood vessels throughout the body. The symptoms of PH can often be confused for other conditions like asthma, so the diagnostic process requires you to see a specialist.

Share Awareness Resources

After you’re armed with information about PH, you can share it with others. The fastest and least expensive way for this kind of advocacy is through social media. You can post information about PH, share details about the condition, and join communities of other people who are also working to raise awareness about PH.

You can use these social media resources from the Pulmonary Hypertension Association to help raise awareness among your network.

Additionally, to ensure your messages on social media reach as many people as possible, consider using an appropriate PH-related hashtag, like #PulmonaryHypertension, #PHAwarenessMonth, or #LifeInPurple. This way, your posts will be seen by more people who have the same interests, and they’re more likely to share and comment.

Social media helps raise awareness for the condition, and it also allows other people with PH to realize they aren’t alone. Joining a PH community on social media, such as myPHteam, can also help you connect with others.

Participate in Awareness Activities

Another way to raise awareness about PH is to participate in an activity dedicated to the cause. You can walk or run for PH, play bingo, host a silent auction or fundraiser, or even create a unique event that works for your interests. You can help other people understand more about PH while having fun and raising money for the cause.

“Will you join me in wearing something purple tomorrow to help kick off this month?” asked one myPHteam member. “Promoting awareness is so important in order for people to recognize and be aware that such a disease as pulmonary hypertension exists and all its manifestations. It is a rare disease that probably most of us at diagnosis had never heard of before.”

“I, too, will wear purple and I will tell everyone in my family, because they are very supportive of me with my health care, so I know they will be more than happy to help us out,” another member responded.

If you are able to, you can also donate to the Pulmonary Hypertension Association to support PH research and advocacy.

Connect With Others Who Understand

On myPHteam, more than 38,000 people living with PH come together to ask questions, give advice, and share their stories with others who understand life with the condition.

Share your PH journey in the comments below, or start a conversation by posting on your Activities page.

All updates must be accompanied by text or a picture.
Anika Brahmbhatt is an undergraduate student at Boston University, where she is pursuing a dual degree in media science and psychology. Learn more about her here.

Related articles

Chest pain is one of the most common symptoms of pulmonary hypertension (PH), along with...

Chest Pain and Pulmonary Hypertension: Causes and Treatment

Chest pain is one of the most common symptoms of pulmonary hypertension (PH), along with...
Fluid retention in the belly (ascites) and an accumulation of fluid in the hands and feet...

Fluid Retention, Swelling, and Pulmonary Hypertension: Causes and Management

Fluid retention in the belly (ascites) and an accumulation of fluid in the hands and feet...
Pulmonary hypertension (PH) is one type of high blood pressure affecting the arteries in the...

Sleep Problems and Pulmonary Hypertension

Pulmonary hypertension (PH) is one type of high blood pressure affecting the arteries in the...
Chest pain (angina) is one of the most common symptoms of pulmonary hypertension (PH), along with...

Pain and Pulmonary Hypertension

Chest pain (angina) is one of the most common symptoms of pulmonary hypertension (PH), along with...
Pulmonary hypertension (PH) is a disease in which the pulmonary arteries (blood vessels) between...

Managing Fatigue and Pulmonary Hypertension

Pulmonary hypertension (PH) is a disease in which the pulmonary arteries (blood vessels) between...
Pulmonary hypertension (PH) is a condition in which the blood vessels between the heart and the...

Difficulty Breathing and Pulmonary Hypertension

Pulmonary hypertension (PH) is a condition in which the blood vessels between the heart and the...

Recent articles

Following a healthy diet benefits everyone, but it can be especially important for managing the...

Diet and Pulmonary Arterial Hypertension: What To Eat and What To Avoid

Following a healthy diet benefits everyone, but it can be especially important for managing the...
The term “palliative care” is often thought of as end-of-life care, or hospice care. However, it’...

Palliative Care: Improving Quality of Life With PH at Any Stage

The term “palliative care” is often thought of as end-of-life care, or hospice care. However, it’...
Pulmonary hypertension (PH) refers to high blood pressure in the blood vessels that travel...

Pulmonary Venous Hypertension vs. Pulmonary Arterial Hypertension: What’s the Difference?

Pulmonary hypertension (PH) refers to high blood pressure in the blood vessels that travel...
Nearly half of the myPHteam members who responded to the survey reported a worsening of their...

Survey of myPHteam Members: Staying Engaged With PAH Care During the Pandemic Made a Difference

Nearly half of the myPHteam members who responded to the survey reported a worsening of their...
Pulmonary hypertension (PH) — particularly pulmonary arterial hypertension (PAH) — is often found...

Connective Tissue Diseases and Pulmonary Hypertension: What’s the Connection?

Pulmonary hypertension (PH) — particularly pulmonary arterial hypertension (PAH) — is often found...
Pulmonary hypertension (PH) is a lung and heart disease caused by high pressure in the arteries...

What To Know About Right Heart Catheterization and Pulmonary Hypertension

Pulmonary hypertension (PH) is a lung and heart disease caused by high pressure in the arteries...
myPHteam My pulmonary hypertension Team

Thank you for subscribing!

Become a member to get even more:

sign up for free

close