Connect with others who understand.

sign up log in
About myPHteam

Member Spotlight: Pulmonary Hypertension (PH): Persistence, Hope, and Love

Posted on December 19, 2019

Pulmonary hypertension (PH) means persistence and hope to me. I am newly diagnosed with pulmonary hypertension, though I have had many health issues for years. I am only 40 years old, married to an amazing man, Joshua. We have a beautiful three-year-old daughter, Wynter. I still work part time as a home health registered nurse. I have a lot of empathy and compassion for my patient and her family.

I am still having more tests to evaluate causes for PH, and to develop a good treatment plan. I see many doctors and have been referred to the Cleveland Clinic Respiratory Institute. I have just begun using a CPAP machine at night for sleep apnea. I am on several medications, including asthma, gastrointestinal, and thyroid medications.

Initially when I was diagnosed, I thought that PH was a death sentence, that I may only live for two more years. But after much research, more tests, more doctors appointments, and joining myPHteam, I have great hope for my future.

I have made great, true friends on myPHteam, and would like to spread awareness of pulmonary hypertension. Though I once thought, "Why me? Now I believe why NOT me?" I believe that God has a plan for all of us. And this was my plan. I feel very lucky and blessed to have my family, job, and good health care. I believe that we all can make a difference, however small, if we continue with hope and persistence.

I continue to hope and persist, despite hardship, for my family and loved ones. I lost my 25-year-old brother to an overdose in 2018. Life is fleeting and so very BEAUTIFUL. We all need to make the very best of our time here.

This article was written by myPHteam member AnneElizabeth as part of the Member Spotlight Series. Anne has a beautiful 3-year-old girl, is married to her best friend, and works part time as a home health nurse.

Do you want to be a part of the myPHteam Member Spotlight Series?
Let us know here: support@myPHteam.com

A myPHteam Member said:

Me too.thank you.

posted 7 days ago

hug (1)

Recent articles

Pulmonary arterial hypertension (PAH) is a specific type of pulmonary hypertension (PH).PAH...

What Is Pulmonary Arterial Hypertension (PAH)?

Pulmonary arterial hypertension (PAH) is a specific type of pulmonary hypertension (PH).PAH...
Diagnosing PAH is a process of elimination – other diseases and disorders must be ruled out....

Pulmonary Arterial Hypertension (PAH) Diagnosis and Treatments

Diagnosing PAH is a process of elimination – other diseases and disorders must be ruled out....
Telemedicine is the use of two-way communication technology to provide health care.More people...

Access Your Doctor Without Leaving Your Home

Telemedicine is the use of two-way communication technology to provide health care.More people...
Risk assessment for pulmonary arterial hypertension (PAH) helps monitor disease progression and...

What Is Risk Assessment for Pulmonary Arterial Hypertension?

Risk assessment for pulmonary arterial hypertension (PAH) helps monitor disease progression and...
Risk assessment for pulmonary arterial hypertension (PAH) is based on your personal health...

How Is Risk Assessed for Pulmonary Arterial Hypertension?

Risk assessment for pulmonary arterial hypertension (PAH) is based on your personal health...
Doctors can perform risk assessment for pulmonary arterial hypertension (PAH) using telemedicine....

Remote Risk Assessment for Pulmonary Arterial Hypertension

Doctors can perform risk assessment for pulmonary arterial hypertension (PAH) using telemedicine....
Thousands of members of myPHteam connect with one another and read each other's stories to gain...

Three Books About Pulmonary Hypertension You Should Read

Thousands of members of myPHteam connect with one another and read each other's stories to gain...
Pulmonary hypertension (PH) commonly occurs among the general public. Pulmonary arterial...

PAH vs. PH: What's the Difference?

Pulmonary hypertension (PH) commonly occurs among the general public. Pulmonary arterial...
COVID-19 can be particularly deadly for people with pulmonary hypertension (PH) or pulmonary...

Pulmonary Hypertension (PH) and COVID-19

COVID-19 can be particularly deadly for people with pulmonary hypertension (PH) or pulmonary...
Pulmonary hypertension causes a decrease of blood flow to the heart and increased pressure in...

Managing Weight Gain and Pulmonary Hypertension

Pulmonary hypertension causes a decrease of blood flow to the heart and increased pressure in...
myPHteam My pulmonary hypertension Team

Two Ways to Get Started with myPHteam

Become a Member

Connect with others who are living with pulmonary hypertension. Get members only access to emotional support, advice, treatment insights, and more.

sign up

Become a Subscriber

Get the latest articles about pulmonary hypertension sent to your inbox.

Not now, thanks

Privacy policy
myPHteam My pulmonary hypertension Team

Thank you for signing up.

close