My Perspective: Pulmonary Hypertension: Persistence, Hope, and Love | myPHteam

Connect with others who understand.

sign up Log in
Resources
About myPHteam
Powered By
See answer

My Perspective: Pulmonary Hypertension: Persistence, Hope, and Love

Posted on December 19, 2019

Pulmonary hypertension (PH) means persistence and hope to me. I am newly diagnosed with pulmonary hypertension, though I have had many health issues for years. I am only 40 years old, married to an amazing man, Joshua. We have a beautiful three-year-old daughter, Wynter. I still work part time as a home health registered nurse. I have a lot of empathy and compassion for my patient and her family.

I am still having more tests to evaluate causes for PH, and to develop a good treatment plan. I see many doctors and have been referred to the Cleveland Clinic Respiratory Institute. I have just begun using a CPAP machine at night for sleep apnea. I am on several medications, including asthma, gastrointestinal, and thyroid medications.

Initially when I was diagnosed, I thought that PH was a death sentence, that I may only live for two more years. But after much research, more tests, more doctors appointments, and joining myPHteam, I have great hope for my future.

I have made great, true friends on myPHteam, and would like to spread awareness of pulmonary hypertension. Though I once thought, "Why me? Now I believe why NOT me?" I believe that God has a plan for all of us. And this was my plan. I feel very lucky and blessed to have my family, job, and good health care. I believe that we all can make a difference, however small, if we continue with hope and persistence.

I continue to hope and persist, despite hardship, for my family and loved ones. I lost my 25-year-old brother to an overdose in 2018. Life is fleeting and so very BEAUTIFUL. We all need to make the very best of our time here.

This article was written by myPHteam member AnneElizabeth as part of the My Perspective series. Anne has a beautiful 3-year-old girl, is married to her best friend, and works part time as a home health nurse.

Do you want to be a part of the myPHteam My Perspective series?
Let us know here: support@myPHteam.com

Posted on December 19, 2019
All updates must be accompanied by text or a picture.

We'd love to hear from you! Please share your name and email to post and read comments.

You'll also get the latest articles directly to your inbox.

This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply.

Related Articles

Rosetta is a 35-year-old woman living with idiopathic pulmonary arterial hypertension (iPAH). She...

Managing Life With PAH: Rosetta’s Story

Rosetta is a 35-year-old woman living with idiopathic pulmonary arterial hypertension (iPAH). She...
When you’re living with pulmonary hypertension (PH) or pulmonary arterial hypertension, it’s impo...

The Best Places To Live With Pulmonary Hypertension

When you’re living with pulmonary hypertension (PH) or pulmonary arterial hypertension, it’s impo...
I’ve come to a place of appreciation with pulmonary arterial hypertension, commonly referred to a...

My Perspective: Pulmonary Arterial Hypertension, My New Reality

I’ve come to a place of appreciation with pulmonary arterial hypertension, commonly referred to a...

Recent Articles

MyHealthTeam does not provide health services, and if you need help, we’d strongly encourage you ...

Crisis Resources

MyHealthTeam does not provide health services, and if you need help, we’d strongly encourage you ...
If you have a connective tissue disease like scleroderma, you may be wondering how else it affect...

Scleroderma in PAH: 4 Facts To Know

If you have a connective tissue disease like scleroderma, you may be wondering how else it affect...
Your body craves oxygen. In fact, each organ in your body, from your toe muscles to your brain, n...

How the Pulmonary Artery Functions: 5 Things To Know

Your body craves oxygen. In fact, each organ in your body, from your toe muscles to your brain, n...
Coughing is a rare but bothersome symptom of pulmonary arterial hypertension (PAH). This long-ter...

8 Tips To Manage Coughing From PAH

Coughing is a rare but bothersome symptom of pulmonary arterial hypertension (PAH). This long-ter...
Symptoms of pulmonary arterial hypertension (PAH) can be serious and shouldn’t be ignored. Mainta...

6 PAH Symptoms You Shouldn’t Ignore

Symptoms of pulmonary arterial hypertension (PAH) can be serious and shouldn’t be ignored. Mainta...
Risk assessment for pulmonary arterial hypertension (PAH) helps doctors monitor how your disease ...

PAH Risk Assessment: How Doctors Predict Progression

Risk assessment for pulmonary arterial hypertension (PAH) helps doctors monitor how your disease ...
myPHteam My pulmonary hypertension Team

Thank you for subscribing!

Become a member to get even more:

sign up for free

close