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My Perspective: Pulmonary Hypertension: Persistence, Hope, and Love

Posted on December 19, 2019

Pulmonary hypertension (PH) means persistence and hope to me. I am newly diagnosed with pulmonary hypertension, though I have had many health issues for years. I am only 40 years old, married to an amazing man, Joshua. We have a beautiful three-year-old daughter, Wynter. I still work part time as a home health registered nurse. I have a lot of empathy and compassion for my patient and her family.

I am still having more tests to evaluate causes for PH, and to develop a good treatment plan. I see many doctors and have been referred to the Cleveland Clinic Respiratory Institute. I have just begun using a CPAP machine at night for sleep apnea. I am on several medications, including asthma, gastrointestinal, and thyroid medications.

Initially when I was diagnosed, I thought that PH was a death sentence, that I may only live for two more years. But after much research, more tests, more doctors appointments, and joining myPHteam, I have great hope for my future.

I have made great, true friends on myPHteam, and would like to spread awareness of pulmonary hypertension. Though I once thought, "Why me? Now I believe why NOT me?" I believe that God has a plan for all of us. And this was my plan. I feel very lucky and blessed to have my family, job, and good health care. I believe that we all can make a difference, however small, if we continue with hope and persistence.

I continue to hope and persist, despite hardship, for my family and loved ones. I lost my 25-year-old brother to an overdose in 2018. Life is fleeting and so very BEAUTIFUL. We all need to make the very best of our time here.

This article was written by myPHteam member AnneElizabeth as part of the My Perspective series. Anne has a beautiful 3-year-old girl, is married to her best friend, and works part time as a home health nurse.

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