Pulmonary Hypertension

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Need to find a DR who actually treats PH in Springfield IL

Need to find a DR who actually treats PH in Springfield IL

I have been seeing a regular cardiologist since 2013 for PH & CHF. Current doc refuses to treat for PH. I seeked out a 2nd opinion this week and this NEW grad DR informed me that there was absolutely NOTHING wrong with me, even though I provided labs, test results to include Heart Caths, and Stress test. I have been on Coreg since 2013. IF there is nothing wrong with me them WHY do I need drugs! SO angry it isn't funny anymore!

A myPHteam Member said:

Ask your Dr that same question . If he doesn't answer you then change for a second opinion

posted 6 months ago

% of heart function with PH?

% of heart function with PH?

I finally have a cardiologist that has acknowledged my PH. I was diagnosed with PH last year. I was just told I had it. No additional information about it other than I needed to go on O2 and inhalers. I have very very very mild COPD and do not take anything for it. I was just told my PH was at 45%. Not sure what this means.

A myPHteam Member said:

It should be 30

posted 11 months ago

Does anyone have a child or grand child born with PH? .

Does anyone have a child or grand child born with PH? .

He was born past due and weighed 12.7 pounds. He had low blood sugar. He was diagnosed later in the day and was transferred to a better hospital that could give him the medication he needed. Does anyone have experience with new born PH? Im worried he didnt get enough oxygen to his brain before they caught it.

What is the best way to get the attention of PH doctors who do not have a sense of urgency in your case and how do you get them motivated???

What is the best way to get the attention of PH doctors who do not have a sense of urgency in your case and how do you get them motivated???

I was finay diagnosed with PH four months after it showed its ugly head when the pulseox would not go over 87 after rotator cuff surgery in October 2017. It was not actually diagnosed until I had a heart attack the end of January 2018 even though I had been on oxygen 100% of the time since October 5th. The first meeting with my pulmonologist he referred me to a specialist team… read more

A myPHteam Member said:

Chuckie sometimes we have to raise hell with someone. Keep it up till you are satisfied. If not satisfied find another Dr. Good luck to you. H LLP e to… read more

posted 24 days ago

Pressure % in heart/lung valve

Pressure % in heart/lung valve

Does anyone know how high the pressure % can go in a person with PH? The doctor said the other day that mine were over 100 so I asked how high can they go and he sid he didn't know but said mine were way too high and he's sending me to a PH speciaist.

A myPHteam Member said:

mine has been up to 9000 thats when I stay in the hospital for weeks

posted 8 months ago

What questions should I ask my doctor? I have not had a diagnosis of PH yet.

What questions should I ask my doctor? I have not had a diagnosis of PH yet.

A myPHteam Member said:

Write your questions down? I find it helps with the problem you have. Also it helps your Dr help you. Blessings .

posted 3 months ago

Does ph slow me down and make me impatience since I am caregiver to my husband who has a lil dementia but lots of health issues

Does ph slow me down and make me impatience since I am caregiver to my husband who has a lil dementia but lots of health issues

now that I am 75 and being Irsih and lil Indian find it difficult to slow down and still take care of my husband and myself as of lately we have had a lot of issues with owning our house but find it small and manageible, however my husband has had a rough year blood clots and failing health find myself losing my patience but wonder if the PH is also a part of my problem

A myPHteam Member said:

Hi I also care for my husband. We are allowed to have our day! It's normal to feel this way. Have a blessed day. We need to take care of one another.… read more

posted 3 months ago

I was having a stabbing knife feeling in my small intestine area and found a cure. Anyone else haveing these pains?

I was having a stabbing knife feeling in my small intestine area and found a cure. Anyone else haveing these pains?

After doing some research these pains are related to PH. My PH team said its not part of PH. I did my own research and found three articles referencing this. A recent study done on lab rats in Spain and another more detailedwrite up as well as an article from about 6 years ago stating this was an effect of PH. So the cure to getting rid of this side effect is to increase your probiotics. Start eating… read more

A myPHteam Member said:

What???

posted over 1 year ago

Please send me information on the PH symptoms and if you can have both PH and COPD

Please send me information on the PH symptoms and if you can have both PH and COPD

What is the treatment for the PH and can you also have COPD with the PH ?? I was told I have both. And now suppose to be on oxygen 24/7. I can not return to the job I had and use oxygen. I need to work to support my self.

A myPHteam Member said:

I am on oxygen 24/7 I just recently stopped working I have portable carry on one that is good and at my job I was allowed to have a oxygen machine there… read more

posted 11 months ago

My Pulmomologist said I have PH and has not given me anything to help with symptoms.

My Pulmomologist said I have PH and has not given me anything to help with symptoms.

I feel very fatigued, Dizzy and short of breath most/All days. Especially after trying to do something for an hour or so the day before. I have been like this for 2.5-3 years. My pulmonologist is not treating me for it just making me do more tests with cardiologist. I live in Oklahoma and the Humidity is making it worse. I can't work.
It starts when I wake up (I am on CPAP) and gets worse when I shower. If I bend over to tie my… read more

A myPHteam Member said:

Hi, what does it take to have your Doctor prescribe Oxygen is the question. It use to be easy to get Oxygen but the Government has recently changed the… read more

posted 16 days ago