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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "how to change the introduction in my story"

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I Need To Change My Location On My Profile.

I Need To Change My Location On My Profile.

How do I change my location on my profile so I can concentrate on meeting PHrs close to me?

A myPHteam Member

I was in Alabama, now I live in Zephyrhills, FL

. How Often Should We Have A Catherization Done? How Often Does Your Pulmonologist Recommend Having It Done?

. How Often Should We Have A Catherization Done? How Often Does Your Pulmonologist Recommend Having It Done?

How often are right heart catherizations done. I wonder as I feel I am getting worse. Has anyone had them done more than twice and it’s it used to check your severity of the disease?

A myPHteam Member

I have had 2 but they did them both because of heart issues. They were able to check my pressures so that helped with my PH diagnosis.

Blood Pressure Medication

Blood Pressure Medication

I have very high blood pressure. Without medication it averages 190/107. If I take my blood pressure medication as directed and my blood goes into the normal range my chest start hurting and develop an ectopic heart beat. It got so bad I went to the er thanking I was having a heart attack. I was wondering if anyone else has experienced this and how they treat hypertension without those side effects.

A myPHteam Member

Have you been diagnosed with chronic resistant hypertension? There are meds that will drop your BP immediately to a safer level. Hopefully your doctor will prescribe something! The chest pain… read more

Does Anyone Here Take Remodulin? ( For PH)

Does Anyone Here Take Remodulin? ( For PH)

It’s working wonders, along with two other drugs, but, because it’s a subcutaneous drug, with changes of a mix every three days with a pump, it’s alot to cope with! Anyone?

A myPHteam Member

My doctor originally wanted me to take remodulin subcutaneously, but it was too much to deal with and I knew I couldn't. So I am on a pill called orenitran that I take 3 times a day 8 hours apart… read more

Does Anyone Have A Change In Their Voice Or Feel Like They Are Losing Their Voice All The Time?

Does Anyone Have A Change In Their Voice Or Feel Like They Are Losing Their Voice All The Time?

About a month ago I thought I was losing my voice but it never completely goes away, and it just stays at this high pitched raspy voice. I also am running out of air when I’m trying to say something to someone.

A myPHteam Member

Oh my God I have that off and on I didn't know it was part of this.... And yes as I worked at the front desk there at NextCare and I was trying to check patients in and talking to them and I had a… read more

So I Am Retaining Fluid Swollen Everywhere. My Doctor Scared I Am Literally Drowning Myself. Gave Me 24 Hrs To Get Fluid Off Or Go To Er.

So I Am Retaining Fluid Swollen Everywhere. My Doctor Scared I Am Literally Drowning Myself. Gave Me 24 Hrs To Get Fluid Off Or Go To Er.

So he doubled my lasix and I have been cathed since monday. Let's say 60 hours now and I have got off 10 liters of fluid. When do I know if I get to much off at one time? I am already feeling so tired and week. The swelling has gone done and I can now move my hands and feet.

A myPHteam Member

Hi Katherine, sounds like it is time to change your diet. Try something new and different, you might be surprised you might enjoy what is available now in the stores. I enjoy soups and have figured… read more

Does Anyone Else Get Extremely Short Of Breath And Experience Pain When You Bend Over?

Does Anyone Else Get Extremely Short Of Breath And Experience Pain When You Bend Over?

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A myPHteam Member

I was told that any body position you change, it must be done slowly and gradually. I get dizzy sitting down too quickly plus my heart races and it's because of the change in body position and the… read more

How Long Do The Side Effects Of Tadalafil Last

How Long Do The Side Effects Of Tadalafil Last

The hot flashes and flushing from tadalafil is awful. Worse than menopause. I was diagnosed Jan 2021. On tadalafil since March of 2021. Still have terrible hot flashes. Actually wakes me up at night still.

Does it ever get better. I know it’s working SOB is better last set of labs and tests were great. Also on Opsumit as of Dec 2021 ( changed from Bosentan Mar 2021 to Dec 2021). Added Uptravi March 2022. Still titrating only at 400mcg in am and 600mcg at night. The side effects are no joke… read more

A myPHteam Member

I’m on opsumit and tadalafil also without side effects. I’m sorry it’s so uncomfortable for you

How To Get Others To Understand What It Is Like To Have This Disease

How To Get Others To Understand What It Is Like To Have This Disease

This disease is hard on relationships. It not only changes our lives but changes everyone else’s around us as well. I know my friends and family can get frustrated too. I would like to help them understand what it is like living with this but do t really know how. I try to explain but don’t think I’m getting anywhere. Ideas?? Thank you

A myPHteam Member

Hi, I'm new to the group. Have you considered going on social security disability? I don't know if you are in the USA, but if you are, find an attorney who specializes in disability claims. It's a… read more