Connect with others who understand.

sign up log in
About myPHteam

Connect with others who understand.

sign up log in
About myPHteam
Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "anyone else having trouble with the story updates"

reset

Does Anyone Have Auto-immune Issue Causing PH?

Does Anyone Have Auto-immune Issue Causing PH?

I recently tested positive for scleroderma associated with my PAH. Does anyone use medication for this?

posted over 1 year ago
A myPHteam Member said:

Oops! I guess that's not a clam!不不不不不

posted about 2 months ago

. How Often Should We Have A Catherization Done? How Often Does Your Pulmonologist Recommend Having It Done?

. How Often Should We Have A Catherization Done? How Often Does Your Pulmonologist Recommend Having It Done?

How often are right heart catherizations done. I wonder as I feel I am getting worse. Has anyone had them done more than twice and its it used to check your severity of the disease?

posted 11 months ago
A myPHteam Member said:

MO that's how mine was detected by Echocardiogram. I had a Cardiac Cather years ago because they thought they saw a value issue. The Cath was normal.

posted about 1 month ago

What Did People Learn About Their PH At The Mayo Clinic That Was Not Clear To Them From Their Home Doctors

What Did People Learn About Their PH At The Mayo Clinic That Was Not Clear To Them From Their Home Doctors

posted about 1 month ago
A myPHteam Member said:

Kerri2
Your story is similar to mine. My right heart cath was very high and I too was heart failure when they took by ambulance to Mayo. I'm on the Remogline I couldn't take the generic of it. Do read more

posted 26 days ago

Any Woman With PH That Is On Oxygen 24/7, Have Problems Finding A Bra That Supports But Does Not Case SOB?

Any Woman With PH That Is On Oxygen 24/7, Have Problems Finding A Bra That Supports But Does Not Case SOB?

posted 2 months ago
A myPHteam Member said:

I found one that I can wear longer than anything else. It's called: DELIMIRA : front closure, wire free, back support, unlined. Found this thru Walmart. It's from a 3rd party vendor. If u order this read more

posted about 2 months ago

Please Send Me Information On The PH Symptoms And If You Can Have Both PH And COPD

Please Send Me Information On The PH Symptoms And If You Can Have Both PH And COPD

What is the treatment for the PH and can you also have COPD with the PH ?? I was told I have both. And now suppose to be on oxygen 24/7. I can not return to the job I had and use oxygen. I need to work to support my self.

posted over 4 years ago
A myPHteam Member said:

I think they classified me as cold along with pah

posted about 1 month ago

Is Anyone On This Site Taking Letaris, Adcirca And Uptravi. I Just Started Uptravi And The Side Effects Are Awful!

Is Anyone On This Site Taking Letaris, Adcirca And Uptravi. I Just Started Uptravi And The Side Effects Are Awful!

posted about 2 years ago
A myPHteam Member said:

I take them both as well as sildenfil titrate down 9n the uptravi if your side effects are bothering you that much. That's what my CVS nurse did for me. Not everyone is meant to be at Max dose

posted 3 months ago

I Have A Question About Working A Regular Job.

I Have A Question About Working A Regular Job.

After having PH, did it take over your ability to work? I am finding it hard to work because of lack of O2 and my chest hurting and also staying awake. I have been working from home for almost a year now because of COVID. We don't want me to get sick because I'm a big baby when I'm sick. My wife and I were talking and we don't know if this is a disease that is according to SSI an approved disability disease. I'm a year and a half away from my retirement from the state and I like to work, it read more

posted 10 months ago
A myPHteam Member said:

SheilaAnderson3- the Chamber of Commerce usually needs help with keeping the brochure displays filled with the appropriate brochures. They have monthly newsletters or newspapers that they need help read more

posted 10 months ago

Medicines

Medicines

I will be going in hospital soon to start the IV therapy. Very nervous and anxious dont know what to expect. My family will not be able to visit because of Covid so staying alone in a hospital bed and have no idea what to expect has done a job on my mind
How has everyone else coped with this kind of situation
I have been dealing with PAH for awhile now and it seems to be getting worse. I also have bad lungs and a disease called scleroderma which I have had since being in my 30s. I am a read more

posted 8 months ago
A myPHteam Member said:

Yeah Docs hesitate to give Prednisone for anything but it does seem to make everything better. We can't live on it because it can hurt kidneys etc. But during flare ups it really is great!

posted 7 months ago

Opsumiti

Opsumiti

I'm 51 I was prescribed opsumiti,3 days ago.. I haven't started taking it yet waiting for it in mail. Is opsumiti we'll tolerated has anyone had any severe allergic reactions to it..

posted 7 days ago
A myPHteam Member said:

Part2: did you know you only get 3000 characters? Im way to wordy for this site.

Anyway, I do have a couple non-side effect related grips about opsumit.

First, Im 50 and every time I order read more

posted 6 days ago