Has any one hwre had a heart and lung transplant or have been told by Drs that its time to start making decisions about it??? Both my lung and heart Drs told me this is something i will be needing to do NOT AT THE MOMENT IM NOT AT EMERGENCY POINT BUT EVENTUALLY I WILL...WELL MAYBE. And if i do its better to be on THE LIST than not be its such a.long process its self . thats if i qualify ...i have soooooooo much going on at this point im freaking out and just making peace in my life… read more
When diagnosed with PhD with microbacterium can you still use the heart and lung transplant process if the antibiotics and medication don't work
I am on 10 liters of oxygen...is anyone on that amount.
I have PH and also COPD, ILD and rheumatoid arthritis. I am on Letairis for the PH, Spiriva and Breo for lungs and Celebrex for arthritis. All along I have assumed that the SOB when exerting myself too much, or bending over, is from lung issues and the pounding heart is the PH, but could ALL of these symptoms be PH? I'm on 3 liters O2 for exercising and 2 at night. How can I know what meds are working for what problem? I've got checkups with heart and lung docs at the end of May… read more
I feel very fatigued, Dizzy and short of breath most/All days. Especially after trying to do something for an hour or so the day before. I have been like this for 2.5-3 years. My pulmonologist is not treating me for it just making me do more tests with cardiologist. I live in Oklahoma and the Humidity is making it worse. I can't work.
It starts when I wake up (I am on CPAP) and gets worse when I shower. If I bend over to tie my… read more
Never had pressure before transplant. His pressure is 45 in right ventricle. I can explain all about transplant don’t understand PH. Thank you Susan Bleacher