Has anyone been on or is participating in a clinical trial for PAH? If so, did they work well for you?
I was referred back to a local PH clinic at the hospital from my PCP due to my PH going from mild to moderate. I just got a call back from the clinic stating that I was released from the clinic last October because it was noted I did not have IPAH and that is why they sent me to a cardiologist for the heart issues which were also discovered at the time, they then told me the clinic only treats IPAH. If my PH is worse, my… read more
Where in west uk if have underlying conditions as no assistance & Function made worse by breathing & them eg: temporary kyphosis spasticity relating to targetted antibiotics for utis neurogenic bladder, endemetriosis & spina bifida abnormall EEG ?causing CFS / fibro in weaker area affectd by A-fib & weak heart pumping & low thyroids [ genetic females] diabetes 1 on both sides too [ male twin cousins] as well as hormonal.autoimmune ,heart stroke
Family of pharnacists &… read more
I was told by a clinical pharmacist that the effects of Letairis would not be noticed until 4-6 weeks. Is this accurate?
I was on Symbicort and Spiriva for years. I tried to get on a clinical trial for Trelegy 2 years ago but could not blow 25% lung function. Without meds I blow 13%. My pulmanary Dr. was part of the team and when it came on market I started using it. I LOVE IT! ! time in morning and I breath easy all day long. I still run low on o2 during strenuous activity, but I don't feel like a bear is squeezing me. In march I started on [[treatment:… read more
I have not been diagnosed by a Dr but have been tested for everything under the sun. Hospital 3 times in one day. I'm frustrated there must be something for this breathing issue.
Has anyone with CTEPH undergone a balloon pulmonary angioplasty? I will be the first patient at the Mayo Clinic Jacksonville Florida and I am wondering what to expect if someone else has had this procedure.
I have been seeing a regular cardiologist since 2013 for PH & CHF. Current doc refuses to treat for PH. I seeked out a 2nd opinion this week and this NEW grad DR informed me that there was absolutely NOTHING wrong with me, even though I provided labs, test results to include Heart Caths, and Stress test. I have been on Coreg since 2013. IF there is nothing wrong with me them WHY do I need drugs! SO angry it isn't funny anymore!