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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Clinical trials"

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PAH Clinical Trials

PAH Clinical Trials

Has anyone been on or is participating in a clinical trial for PAH? If so, did they work well for you?

A myPHteam Member said:

Hmalohmery good morning
Thanks for the hug. Most appreciated. Hope your day goes well. Hugs and prayers.

posted 4 months ago

Has Anyone Been Told They Cannot Go To The PH Clinic Because They Don't Have A Specific PH?

Has Anyone Been Told They Cannot Go To The PH Clinic Because They Don't Have A Specific PH?

I was referred back to a local PH clinic at the hospital from my PCP due to my PH going from mild to moderate. I just got a call back from the clinic stating that I was released from the clinic last October because it was noted I did not have IPAH and that is why they sent me to a cardiologist for the heart issues which were also discovered at the time, they then told me the clinic only treats IPAH. If my PH is worse, my… read more

A myPHteam Member said:

Thanks @A myPHteam Member I have an appointment with her tomorrow and so we will work on a plan. My stats are doing well right now since the last echo… read more

posted about 1 month ago

Clinical Trials

Clinical Trials

Where in west uk if have underlying conditions as no assistance & Function made worse by breathing & them eg: temporary kyphosis spasticity relating to targetted antibiotics for utis neurogenic bladder, endemetriosis & spina bifida abnormall EEG ?causing CFS / fibro in weaker area affectd by A-fib & weak heart pumping & low thyroids [ genetic females] diabetes 1 on both sides too [ male twin cousins] as well as hormonal.autoimmune ,heart stroke

Family of pharnacists &… read more

A myPHteam Member said:

Shortness of breath dizzy tired anxiety bad depression back pain leg pain feet pain

posted about 1 year ago

Letairis

Letairis

I was told by a clinical pharmacist that the effects of Letairis would not be noticed until 4-6 weeks. Is this accurate?

A myPHteam Member said:

Yes. My husband worsened once he started Latairis and died within the second month. MD and NP kept saying 'give it time'. But I swear that's what killed… read more

posted 5 months ago

Is Anyone Using [[treatment:Sildenafil:59b7098bff29502bb8a490a5]] ? Trelegy?

Is Anyone Using [[treatment:Sildenafil:59b7098bff29502bb8a490a5]] ? Trelegy?

I was on Symbicort and Spiriva for years. I tried to get on a clinical trial for Trelegy 2 years ago but could not blow 25% lung function. Without meds I blow 13%. My pulmanary Dr. was part of the team and when it came on market I started using it. I LOVE IT! ! time in morning and I breath easy all day long. I still run low on o2 during strenuous activity, but I don't feel like a bear is squeezing me. In march I started on [[treatment:read more

A myPHteam Member said:

Yes Trelegy is the best one puff all day helps its not a permanent fix but it will help more than other two which I was also on

posted about 1 year ago

Is This Controllable With Medication?

Is This Controllable With Medication?

I have not been diagnosed by a Dr but have been tested for everything under the sun. Hospital 3 times in one day. I'm frustrated there must be something for this breathing issue.

A myPHteam Member said:

My Cardiologist is my savior! He agreed my CPAP events were too inconsistent and had the pressure on my machine!

posted about 6 hours ago

Balloon Pulmonary Angioplasty

Balloon Pulmonary Angioplasty

Has anyone with CTEPH undergone a balloon pulmonary angioplasty? I will be the first patient at the Mayo Clinic Jacksonville Florida and I am wondering what to expect if someone else has had this procedure.

A myPHteam Member said:

I have now undergone 3 BPA procedures which opened a total of 4 pulmonary arteries. My Oxygen sats are now usually 91-95 on room air and I did the 6… read more

posted about 1 month ago

Need To Find A DR Who Actually Treats PH In Springfield IL

Need To Find A DR Who Actually Treats PH In Springfield IL

I have been seeing a regular cardiologist since 2013 for PH & CHF. Current doc refuses to treat for PH. I seeked out a 2nd opinion this week and this NEW grad DR informed me that there was absolutely NOTHING wrong with me, even though I provided labs, test results to include Heart Caths, and Stress test. I have been on Coreg since 2013. IF there is nothing wrong with me them WHY do I need drugs! SO angry it isn't funny anymore!

A myPHteam Member said:

Ask your Dr that same question . If he doesn't answer you then change for a second opinion

posted over 1 year ago

ExerciseWHAT IS THE BEST EXERCISE

ExerciseWHAT IS THE BEST EXERCISE

A myPHteam Member said:

Check on bipaps. With continuous pressure of cpap, I cant exhale and felt like I was smothering at night. Finally got changed back to my bipap 2 weeks… read more

posted 7 months ago