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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does PAH cause trouble sleeping.

A myPHteam Member asked a question 💭
2 days ago
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A myPHteam Member

Hi Sylvia, many like Heather says has insomnia, some of us have sleep apnea. A sleep study test may reveal more than you know about your sleep. I will be fitted with CPAP next month after having an in-clinic sleep study done last month. An in-home sleep study is also available, just doesn't give them all the things that can be seen in the clinic study.

2 days ago
A myPHteam Member

I can just tell you that MY entire care team have approved my taking ZzzQuil, or Simply Sleep, or the Ambien for me. I would always advise you to clear anything with your own providers.

ZzzQuil doesn't have the decongestant agent that NyQuil has

1 day ago (edited)
A myPHteam Member

I have prescription Ambien in the house which my regular pulmonologist prescribes for me but I rarley take it. It does help and I feel fine the next day but it can be habit forming and have some long term effects so I generally just take ZzzzQuil which helps my continuity of sleep but still has me restless for the first hour or so I'm in bed.

2 days ago
A myPHteam Member

Hi Sylvia…Yes, many of us complain about having insomnia. Not just those with PAH but all of us with the other forms of PH.

2 days ago
myPHteam

Yes, sleep problems are very common with PAH. In fact, research suggests that up to 71 percent of people with PAH experience some form of sleep-disordered breathing. As one myPHteam member put it, "My sleep is totally out of whack. Sometimes I sleep, and sometimes I don't."

There are a few key reasons PAH can disrupt sleep:

- Show Full Answer

Yes, sleep problems are very common with PAH. In fact, research suggests that up to 71 percent of people with PAH experience some form of sleep-disordered breathing. As one myPHteam member put it, "My sleep is totally out of whack. Sometimes I sleep, and sometimes I don't."

There are a few key reasons PAH can disrupt sleep:

- Shortness of breath – Even if you don't notice it at night, breathing difficulties can disturb your sleep without you realizing it
- Nocturnal hypoxemia – This is when your oxygen levels drop at night, causing frequent waking or unrefreshing sleep
- Sleep apnea – Breathing repeatedly stops and starts during the night
- Restless legs syndrome (RLS) – An overwhelming urge to move your legs, making it hard to settle into sleep
- Insomnia – Difficulty falling or staying asleep, affecting around 13 percent of people with PAH The good news is that treating PAH itself often helps improve sleep. There are also additional options like CPAP therapy for sleep apnea and improving sleep hygiene habits.

It's really worth bringing up any sleep troubles with your healthcare provider — better sleep can meaningfully improve your overall quality of life.

2 days ago

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