Thank you for responding to my question, I have an appointment with my Pulmanologist in 2 weeks and I'll have a long list of questions and hopefully get good answers.

I agree with Heather10, the quicker you are classified, the quicker you can start a proper treatment. Do you have a Pulmonary Hypertension Specialist yet?

Hi Ginette: It's just always important to get a classification of IPAH checked and re-checked as many doctors who aren't truly PH specialists use it as a "dumping ground" to put their PH patients into for lack of correct additional testing that might be appropriate. I was one of those patients misclassified as IPAH until a new PH Clinic director came on board, caught possible errors in my chart and re-tested me, correcting my classification as Group 2, Left Heart Disease.

The reason that's important is that IPAH medications can be very dangerous for non-IPAH patients. I had to be abruptly taken off of Opsumit and Adempas.

Be sure to let us know what you learn. Good luck!

Ginette: Very few general pulmonologists are really qualified as PH specialists who generally would have undergone fellowships in PH and either Cardiology or Critical Care in addition to their residencies in Pulmonology. There of course are some who are, but the knowledge base around PH is changing so rapidly that unless the doctor is focused on it 24/7 it is impossible to stay on top of it.