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I have Group 2 (combined) PH, and do not require oxygen normally at home, although I do have mild hypoxic episodes at night per my sleep study. We just got back from a trip out west where we went through several steep mountain passes at altitudes of 8-11k feet. I had mild respiratory distress at rest, and was really unable to walk around at all so I clearly needed oxygen there. Has anyone been able to get oxygen to use while traveling when they didn't qualify at home?

September 29
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A myPHteam Member

There are companies that will rent the portable oxygen concentrators. Especially in resort areas. I live at altitude. My meds are working well for day to day activities but I definitely need my Inogen machine for exercise.

October 9
A myPHteam Member

I recommend getting a HAST test. (High Altitude Simulation Test). Many large teaching hospitals offer it and it is not any more difficult for a patient than a Pulmonary Function Test. Your PH specialist can order it for you.

September 29 (edited)
myPHteam

What a trip — mountain passes at 8–11k feet are no joke even for people without PH! Your experience makes complete sense. At high altitudes, there's less oxygen in the air, which means the body has to work harder to maintain safe oxygen levels. For someone with PH, who may already have challenges with oxygen delivery, this Show Full Answer

What a trip — mountain passes at 8–11k feet are no joke even for people without PH! Your experience makes complete sense. At high altitudes, there's less oxygen in the air, which means the body has to work harder to maintain safe oxygen levels. For someone with PH, who may already have challenges with oxygen delivery, this extra strain can quickly lead to symptoms like shortness of breath and difficulty moving around.

The good news is that some people with PH only need supplemental oxygen in specific situations — like air travel or high-altitude destinations — even if they don't require it at home. Here's what others have found helpful when preparing for high-altitude or air travel:

- Talk to your doctor before the trip. A PH specialist can evaluate whether you need situational oxygen, even if you don't use it at home.
- Ask about a hypoxic challenge test (also called an altitude simulation test). This test checks how your body responds to lower oxygen levels and can help determine if you'll need oxygen for travel.
- Get a prescription for a portable oxygen concentrator. These devices are available by prescription and pull oxygen from the surrounding air — very practical for travel.
- Bring backup supplies and batteries if using a portable concentrator, especially for longer trips.
- Create an emergency plan with your doctor so you and your travel companions know what to do if symptoms worsen.

One myPHteam member shared: *"I did an altitude test and found that I will need oxygen for the plane."* — showing that testing ahead of time can reveal needs that aren't obvious at home. Given your experience on this trip, it's worth having a detailed conversation with your PH specialist before your next adventure. Your nighttime hypoxic episodes combined with the distress at altitude are important details to share — they paint a clear picture that situational oxygen could make a real difference for you.

With the right preparation, many people with PH continue to travel and explore. It just takes a little extra planning! 🏔️

September 29

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