Hello, Ariadnia. Welcome. That's me. 😁
September 10 (edited)
That's a big step — starting Remodulin subcutaneous and planning to live independently at the same time! It's completely understandable to want to connect with others who truly get what that looks like day-to-day.
Connecting with others who share your specific situation — working full time, living alone, and managing PAH Show Full Answer
That's a big step — starting Remodulin subcutaneous and planning to live independently at the same time! It's completely understandable to want to connect with others who truly get what that looks like day-to-day.
Connecting with others who share your specific situation — working full time, living alone, and managing PAH treatment — can be incredibly valuable. Here are some great ways to find your people:
- Post on your myPHteam Activities page asking specifically for others who work full time and live alone with PAH
- Search Facebook groups using terms like "pulmonary arterial hypertension support" to find communities where you can ask your specific questions
- Follow PAH hashtags on Instagram like #pah and #pulmonaryarterialhypertension to find others sharing their daily experiences
- Ask your care team — a social worker or case manager may know of local or online groups tailored to people managing PAH independently One myPHteam member shared that finding a support group fast helped them get answers and feel less alone — which sounds like exactly what you're looking for right now.
Just a gentle reminder: as you plan your move, make sure your care team knows so they can help ensure your Remodulin management stays safe and supported during the transition. You've got this! 💪
September 8
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