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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myPHteam Member asked a question 💭
Terrell, TX
September 2
 · 
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A myPHteam Member

You can also ask your federal senators to jump in and help. Every senator has a government agency liaison in their office. Go to your senator's website and look for the link to get in touch with their Social Security liaison. I did that when I relocated to Arizona and SSDI hadn't figured out which state would continue my payments. Ends up New York had to continue making all my payments for me. It took my senator's office 3 weeks to do what I couldn't do in about 4 or 5 months.

September 4 (edited)
A myPHteam Member

I live in texas and applied for disability for my PAH and heart failure while still in hospital that was 280 days ago and in texas any response for disability can take up to year and half and I can't work because my blood oxygen levels don't stay above 90 when I'm active or on my it sucks ...do yes I was told u can get disability or SSI but the process in like super, slow very slow , now I'm having to rely on county health program for meds and specialist , I guess some ppl get disability lawyer but I don't think it makes it any faster

September 4
A myPHteam Member

Hello! Yes! You would qualify for SSDI but they have a very high initial turn down rate. Be prepared to have to go though the appeal process.

September 2
A myPHteam Member

Yes you can. I was put on Permanent Disability once diagnosed. However, my employer provided legal assistance to speed up the process.

September 2
myPHteam

Yes, it is possible to qualify for disability benefits with pulmonary hypertension. If PH has prevented you from working for 12 months or more, you may be eligible to apply. Here's what the process generally looks like:

- Apply for benefits through the appropriate program (such as Social Security Disability)
- Submit Show Full Answer

Yes, it is possible to qualify for disability benefits with pulmonary hypertension. If PH has prevented you from working for 12 months or more, you may be eligible to apply. Here's what the process generally looks like:

- Apply for benefits through the appropriate program (such as Social Security Disability)
- Submit documentation of your condition, including medical records and your doctor's notes
- Talk to your doctor to get written documentation of your diagnosis, capabilities, and limitations

If you're still working but struggling, it's also worth knowing that U.S. employers with more than 15 employees are required under the Americans with Disabilities Act (ADA) to provide reasonable workplace accommodations. Your HR department is a good starting point for that conversation.

The most important step is speaking with your doctor first, so they can properly document how PH affects your ability to work. That documentation will be key to supporting your claim.

September 2

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A myPHteam Member asked a question 💭
Monte Vista, CO