When I started Winrevair last September it didn’t give me any side effects. It has, in conjunction with my two other PAH medications significantly reduced my pressure and stopped my right side heart failure. To me it’s a wonder drug!
August 19
Hello I started Remodulin Subq Aug 2025 and Feb 2026 Winrevair was added, thr 2 medication together have really helped me with PAH. Now COPD, emphysema, restricted lung disease is what affecting me. It well all work out . I’m not giving up.
August 15
Winrevair works best when taken at the same time as at least 2 of the other PAH pathway meds. So i hope your other 2 meds get to you quickly.
August 15 (edited)
I wish you well on winrevair. Keep us posted how it is going.❤️
August 15
Starting a new medication is a big step, and it's completely normal to have questions about what's ahead. Winrevair (sotatercept) is a first-in-class treatment for pulmonary arterial hypertension (PAH), meaning it works differently from other PAH medications — it targets a pathway that helps rebalance cell growth in the Show Full Answer
Starting a new medication is a big step, and it's completely normal to have questions about what's ahead. Winrevair (sotatercept) is a first-in-class treatment for pulmonary arterial hypertension (PAH), meaning it works differently from other PAH medications — it targets a pathway that helps rebalance cell growth in the pulmonary arteries.
It's given as a subcutaneous (under the skin) injection, typically once every three weeks by a healthcare provider. Here are some common side effects to be aware of:
- Headaches
- Low blood pressure (hypotension) — you may feel lightheaded or dizzy
- Swelling in the arms and legs (edema) from fluid buildup
- Anemia (low red blood cell count)
- Nosebleeds
These side effects were reported in at least 10% of patients in clinical trials and were at least 5% more common than in those not taking the medication. It's really important to report any new or worsening symptoms to your care team promptly. Keeping a journal of how you feel after each dose can be a helpful way to track changes and have informed conversations with your doctor.
Wishing you all the best on Tuesday — this is a meaningful step in managing your PAH! 💙
August 14