My pulmonary test indicated FEV1 of 89%, but decreased DLCO of 53%. What does that mean? I am on 2L of oxygen when sitting and 3 or 4 when up and moving around. I am on 7 1/2 mg of prednisone a day and diuretics for congestive heart failure. I had 2 rituximab IVs a few months ago. I have pulmonary fibrosis, pulmonary hypertension, congestive heart failure, etc.
Answer Summary
Members came together to help explain pulmonary function test (PFT) results, including what FEV1 and DLCO scores mean for someone managing... Read more
Emily: That pretty much describes housecleaning for a lot of us. For me, if I am doing any bending, I struggle to catch my breath. I do dishwasher emptying in 2 trips. The lowest section the first trip, the 2 higher sections (we have a silverware section as the highest) after.
Today I plan to dust 3 or 4 pieces of furniture and do 2 loads of laundry. I’ll leave the second load in the drier till tomorrow morning.
I’ve come to know what I can and can’t do in one day.
Angie, some days I can barely function, even with using oxygen all the time. I can do one load of laundry and then I have to rest. I load or unload the dishwasher and have to rest. I take a shower, with oxygen on, and it wears me out. However, when I see people out who are obviously fighting cancer, I know how blessed I am,
When I had my PFT it was inside a small booth. Imagine trying at 300 plus pounds trying to get in the narrow booth.
When I saw my pulmonologist last week he said that there is a new pft that you font need to be in a glass booth for. Imlooking forward to seeing what it is
Emily: Remember that ILD is a huge umbrella of over 200 lung disorders. ILD is what MOST pulmonologists deal with.
If you truly have PH, as diagnosed via a right heart Cath, you need an actual and bona fide PH specialist who ONLY deals with PH.