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A myPHteam Member asked a question 💭

It’s been a bit since I have been on here . Have had a lot going with my health. Found out I have a hole in my heart and I am still having a lot of problems with shortness of breath and ankle swelling. They done a right heart cauterization a little over a week ago .and I get an email from my heart dr telling me I have “ significant pulmonary hypertension.” And hes referring on to another pulmonologist. I called into to the office so he could explain what this means. And of course he’s out of… read more

August 7
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A myPHteam Member

Hi Cindy and welcome! Go into your patient portal and look at your report from your Right Heart Catheterization. Look for 2 numbers: mPAP ( MEAN) and PAWP (Wedge) and let me know what they are and I can then explain to you what they mean.

Sometimes the mPAP is written as the third number in a slash series: Systolic/Diastolic/Mean

August 7
myPHteam

First of all, welcome back — and what a lot to be dealing with all at once. Waiting a week for answers after getting a message like that is genuinely stressful, and it makes complete sense that you want to understand what's going on.

"Significant pulmonary hypertension" means the blood pressure in the vessels between your Show Full Answer

First of all, welcome back — and what a lot to be dealing with all at once. Waiting a week for answers after getting a message like that is genuinely stressful, and it makes complete sense that you want to understand what's going on.

"Significant pulmonary hypertension" means the blood pressure in the vessels between your heart and lungs is elevated enough to be causing real problems — like the shortness of breath and ankle swelling you're experiencing.

The right heart catheterization your doctor performed is actually the most accurate test available to confirm and measure PH, so that result carries a lot of weight diagnostically. PH is typically classified into four classes based on how much it affects daily life:

- Class 1 — No symptoms
- Class 2 — Symptoms during normal activity (walking, climbing stairs)
- Class 3 — Symptoms with minimal activity, frequent rest needed
- Class 4 — Severe symptoms even at rest

The referral to a pulmonologist is actually a positive step — these specialists have specific training in managing PH and can build a treatment plan tailored to you.

While most types of PH can't be cured, many people manage it well with medication and lifestyle adjustments. You're now on the path to getting the right care. Hang in there! 💙

August 7

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