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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I have CHF, PH, Bipolar, Fibromyalgia, and Anxiety. I use continuous oxygen. I don’t leave the house. My husband passed away five years ago and I miss him so very much. My groceries are delivered. I haven’t driven For six years. One day at a time.
I am sixty eight years old.

July 30
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A myPHteam Member

I tried it. After a few days I had to stop using it, I felt like I had just had a long surgery with the gas they give you for surgery. So bloated and my shoulders hurt horribly. My pulmonologist reduced the pressure to the lowest and I still had same issues. I don't use it anymore. Talking about maybe the inspire implant.

July 30
myPHteam

First, it's clear you carry a lot with grace and strength — "one day at a time" is truly the right approach, and that kind of resilience is something to be proud of. 💙

Struggling with a BiPAP machine is something many people with PH can relate to. The forced air sensation can feel overwhelming, especially at first.

Here Show Full Answer

First, it's clear you carry a lot with grace and strength — "one day at a time" is truly the right approach, and that kind of resilience is something to be proud of. 💙

Struggling with a BiPAP machine is something many people with PH can relate to. The forced air sensation can feel overwhelming, especially at first.

Here are some things that have helped others adjust:

- Start slow — wearing the mask for short periods while awake before trying to sleep with it
- Mask fit matters — trying different mask styles (nasal pillows, full face, nasal-only) can make a big difference in comfort
- Ramp settings — asking your doctor to enable a "ramp" feature that starts pressure low and gradually increases
- Relaxation techniques — practicing slow, calm breathing before putting the mask on

Since you're already on continuous oxygen, your care team may be able to combine oxygen delivery with your BiPAP setup, which some myPHteam members have found helpful.

The most important step is talking openly with your doctor about the specific discomfort you're experiencing. There may be pressure adjustments or alternative options worth exploring together.

You're not alone in this. 🌸

July 30

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A myPHteam Member asked a question 💭
Surrey, BC