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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myPHteam Member asked a question πŸ’­
Wilson, NC
July 20
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A myPHteam Member

I have to say definitely Yes. When I started with this illness I was close to 300 pounds. Losing half the weight things began to stabilized and get better. Now I have more good days than bad days. I highly recommend losing the weight.

July 20
A myPHteam Member

William986 I have been told by health professionals all my life extra weight effects all conditions. I was also told once I got the cancer diagnosis that it particularly complicates cancer and it's treatment. I took it more seriously then, and lost a lot of my excess weight on purpose. I still have about 50 pounds to go, which is hard when you add in the complications every health condition presents. But I figure as long as you are sincerely trying, being reasonable and not cheating in a sensible way it is far better in the long run. Much more a healthier course of action than trying to do some tricky speed-loss which only ends up being temporary. Look to change your metabolism first, the the weight will leave easier, especially for men. Metabolism in men tends to work more efficiently in the first place, and once activated seems to act turbo-charged. You do have an edge for yourself there.

July 22
A myPHteam Member

Yes! Since last year, even Wegovy and Zepbound have been added to the PH protocol for overweight Group 2 patients. I’ve lost 27 pounds so far with another 10 or so to go.

July 20 (edited)
myPHteam

Yes, carrying extra weight can make fluid retention harder to manage with pulmonary hypertension (PH). That said, not all weight gain with PH is from food β€” fluid retention itself can cause the number on the scale to creep up, which can make it tricky to tell what's what.

Here are some signs that point to water retention Show Full Answer

Yes, carrying extra weight can make fluid retention harder to manage with pulmonary hypertension (PH). That said, not all weight gain with PH is from food β€” fluid retention itself can cause the number on the scale to creep up, which can make it tricky to tell what's what.

Here are some signs that point to water retention specifically:

- Puffiness or swelling in the feet, ankles, or abdomen
- Skin that stays indented when you press it (called "pitting")
- Shiny-looking skin
- Sudden weight gain over a day or a few days A good habit is to weigh yourself every morning before eating or drinking. A myPHteam member shared that their PH clinic advised them to contact the team if they gained 3–4 pounds in a single day, as it usually signals fluid retention.

Some helpful ways to manage fluid retention include:

- Limiting sodium (salt) in your diet
- Staying within any fluid intake limits your doctor has set
- Elevating your feet above heart level when resting
- Wearing compression stockings
- Taking diuretics ("water pills") if prescribed

It's really important to loop in your doctor if swelling is increasing or feels uncomfortable β€” they can adjust treatment as needed.

July 20
A myPHteam Member

Okay on the plus side I get to go shopping alot more often because I go down every month. It may be inches or in size.

July 20

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