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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myPHteam Member asked a question 💭
Los Angeles, CA
June 17
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Idiopathic Pulmonary Arterial Hypertension: Your Guide Read Article...

Answer Summary

A member asked about myocardial and hypertension while dealing with chest tightness, left arm pain, and a known blockage, and the community... Read more

A member asked about myocardial and hypertension while dealing with chest tightness, left arm pain, and a known blockage, and the community rallied with helpful guidance and emotional support. Several members strongly encouraged getting a referral to a pulmonary hypertension specialist, sharing resources from the Pulmonary Hypertension Association to find one nearby, and an informative link clarifying that sleep apnea can actually be a direct cause of Group 3 pulmonary hypertension. A recurring theme was the importance of self-advocacy, with the original member sharing progress including a pending specialist referral, 15 pounds lost, and using a CPAP machine, even while navigating the emotional weight of declining health at age 50.

A myPHteam Member

Actually Sleep Apnea is a direct cause of some of Group 3 WHO classified Pulmonary Hypertension. That’s one reason most of us get tested for it early into diagnostic testing. I will get to my computer and try to find a good link for you.

June 18 (edited)
A myPHteam Member

@A myPHteam Member Sleep Apnea would not cause Pulmonary Hypertension, but if you have Sleep Apnea then your ph specialist that you need to get, will be able to help you get the correct medications and referrals to help you navigate Sleep Apnea. Normally, there are some very similar ways that someone could get diagnosed with Pulmonary Hypertension. Hard drug use can debilitate the right side of the heart, which then can lead to being diagnosed with PH. For some people they have COPD or some lung condition that eventually turns their diagnosis to PH. Some people never know what caused the PH. Some people have a gene in their body that gives them the disease. So dont go crazy looking for a reason. Just make sure you get a ph specialist and get on those meds to help yourself. Advocate for yourself! Take control of your health. God bless 🙏

June 18
A myPHteam Member

Here's a summary of all 5 WHO designated sub-groups. If you scroll down to Group 3 you will see that Sleep Apnea is listed as one of the causes linked to Lung Disease problems tied with PH. https://pulmonaryhypertensionrn.com/types-of-pu...

Types of Pulmonary Hypertension: WHO Groups 1, 2, 3, 4 & 5
Types of Pulmonary Hypertension: WHO Groups 1, 2, 3, 4 & 5
June 18 (edited)
A myPHteam Member

@A myPHteam Member Try to relax a bit. I re-read most of your posts and it really sounds more like the doctors are talking to you about your having (veinous) Hypertension, NOT Pulmonary Hypertension. The two terms do easily get confused.

IF you did have a Right Heart Catheterization (which doesn't sound like you did), your mPAP (Mean) has to be above 20 to diagnose PH and your Wedge (PAWP) would have to be above 15 for it to have been caused by your heart and put you into Group 2.

If you did NOT yet have an RHC but had an echo, your Systolic (RSVP) would have to be in the high 30s to over 40 for most cardiologists to order an RHC as the next step. That would depend on your symptoms, and medical history, But many insurance companies will not cover or approve an RHC for patient with echo scores below that.

So for now, try to relax until you get clarification from your care team.

June 18
A myPHteam Member

And while it doesn't seem like you have yet established if you do have Pulmonary Hypertension or not, IF you ultimately find out that you do, your doctors WILL need to find the cause of the PH to the best that they can as each sub-group has separate guidelines for treatment approaches which for the most part do NOT overlap.

June 18

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