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June 13
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A myPHteam Member

For me, my husband and I have a shared iPhone calendar standing appointment for every other day that also has an alert on it. It pops up 5 minutes before we’re supposed to start the pump change. It’s been so helpful. This way we have both of us being alerted.

June 14
myPHteam

What happens when a Remodulin pump cassette change is delayed by a few hours?

This is a situation where reaching out to your care team right away is really important — don't wait. A lapse in Remodulin delivery can cause a rebound effect, and your team needs to know so they can assess how you're feeling and guide next Show Full Answer

What happens when a Remodulin pump cassette change is delayed by a few hours?

This is a situation where reaching out to your care team right away is really important — don't wait. A lapse in Remodulin delivery can cause a rebound effect, and your team needs to know so they can assess how you're feeling and guide next steps. Here's what to keep in mind:

- Call your PH care team or specialty pharmacy immediately — they have 24/7 support lines for exactly these situations
- Do not try to "catch up" on missed medication without medical guidance
- Watch for symptoms like increased shortness of breath, dizziness, or chest discomfort and report them right away
- Get the new cassette in as soon as possible once you've spoken with your team

You're managing a complex therapy, and life happens — the most important thing right now is getting your care team on the phone. They've seen this before and are there to help!

June 13
A myPHteam Member

@A myPHteam Member Hey there, so I myself have had close calls when it comes to changing out my husbands IV remodulin cassettes. What helps me, is I have a whiteboard on my wall that has the calender template and every month I change out the dates and write on the bottom of the date I changed the cassette as Cassette change and the time. Then I go 2 days and write cassette change again and I do that every 2 days for the whole month and then it reminds me when I need to change out the cassette. Each day when I change it out, I write the time I changed it, so I know around what time to change it out that day. Everyone has their own system but that works for me. I hope it maybe works for you too! God bless

June 13

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