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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
May 4
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A myPHteam Member

Many doctors truly believe themselves to know more about PH than what they really do. And that includes general pulmonologists and general cardiologists.

If you are going to consider having a colonoscopy, insist on it being in a hospital setting with a cardiac anesthesiologist. They go through a special cardiology fellowship including some focus on PH. Chances are they will give you propofol combined with something else but the cardiac anesthesiologist will know they right blend to give you and how to monitor you.

May 4 (edited)
A myPHteam Member

See this bothers me. The doctor said he knows what Ph is.. but does not see the need for me to see a pulmonologist. He wants me to have a colonoscopy.. but I am a little concerned about it with this disease

May 4
A myPHteam Member

@A myPHteam Member Are you still in Spain? Here in the US there is a higher level in the pecking order of anesthesiologists called Cardiac Anesthesiologists. There might be the same kind of thing in Spain. That is the level required for PH patients to have procedures under anesthesia. I am having a Transesophogeal Endoscopy next week and made arrangements for a cardiac anesthesiologist to be there.

May 4 (edited)
A myPHteam Member

Remember what happened to me! This passed August. Colonoscopy they could not wake me up! Took 2 1/2 hours to wake me. I had a aspiration, because I laid on my left side 2 1/2 hours and fluid leaked into mu lung! The hospital and Dr. did not know what to do! You must be incurvated! Good luck and God Bless!

May 4
myPHteam

Are you wondering about sedation options for a colonoscopy and endoscopy when you have PAH, and why your experience might differ from what you had in Spain?

Having PAH does make sedation decisions more complex. Because PAH affects blood flow and oxygen levels, your medical team needs to be extra careful about which Show Full Answer

Are you wondering about sedation options for a colonoscopy and endoscopy when you have PAH, and why your experience might differ from what you had in Spain?

Having PAH does make sedation decisions more complex. Because PAH affects blood flow and oxygen levels, your medical team needs to be extra careful about which sedation method is used — this is actually them looking out for you! 🩺

Here are some key things to know:

- Entonox (the "gas and air" mix of nitrous oxide and oxygen) is sometimes used as a lighter sedation option
- Deeper sedation or general anesthesia (like you may have had in Spain) carries more risk for people with PAH due to potential drops in blood pressure and oxygen levels
- Different countries and hospitals have different protocols, which may explain the difference in your experiences
- Your oxygen levels and heart function need close monitoring throughout any procedure

The most important step is to speak directly with your PAH specialist before the procedure and make sure they communicate with the team performing the colonoscopy and endoscopy. Ask them to explain why they're recommending Entonox specifically given your PAH diagnosis.

Don't be afraid to ask questions — you deserve to fully understand the plan! 💪

May 4

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