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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myPHteam Member asked a question 💭
Willowmore, ZA
April 23
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Prostanoids for Pulmonary Hypertension Read Article...
myPHteam

Pulmonary hypertension (PH) is a chronic condition, which means treatment is typically ongoing and long-term — often for life. The goal of treatment isn't just to manage symptoms in the short term, but to slow the progression of the disease and maintain quality of life over time. Treatment plans are highly individualized Show Full Answer

Pulmonary hypertension (PH) is a chronic condition, which means treatment is typically ongoing and long-term — often for life. The goal of treatment isn't just to manage symptoms in the short term, but to slow the progression of the disease and maintain quality of life over time. Treatment plans are highly individualized and may evolve over time. Here's what to generally expect:

- Regular monitoring — Doctors track how well your body responds to medications and adjust as needed
- Combination therapy — Over time, more than one medication may be needed for better results
- Lifestyle changes — These are ongoing and work alongside medications
- Escalating treatment — If first-line treatments stop working, doctors may consider therapies with stronger effects

The type of PH you have also matters. For example, one specific type may be treatable with surgery, but most forms require continuous, long-term management. The most important thing is to keep your healthcare provider updated on how your current treatment is working and any side effects you're experiencing. They can help fine-tune your plan over time to keep you feeling as well as possible.

April 23
A myPHteam Member

Unfortunately AI is right. PH does not go away though it can usually be managed for years. No matter which of the 5 PH groups you are in, you will need management of your PH for all your remaining time.

April 24
A myPHteam Member

I was on a catheter with Remodulin for a year and half now I take Uptravi 1200 mg 2 xday and Opsumit.

April 25
A myPHteam Member

Due to PH is not something that can be cured as of yet, the medications you may be prescribed, will most likely need to be taken for the rest of your lifetime, or until a cure is possibly found. Now, if you are on any type of subconscious shot or continuous IV pump like for example Remodulin,if your body reacts in a positive way to that medication, you can sometimes be downgraded to taking a few pills instead of having a catheter give you your medication by IV or shot. This is entirely dependent on what your ph specialist decides due to they have the best knowledge of your condition and the best way to move forward.

April 24

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