Ann, mine were in the 80s whenI was put on 24/7 from just nocturnal. I was a mess, thats the point that I couldn't return to work, (oh I tried and didn't get through half the day), even my arterial blood draw was low 50s. I wish you much luck. God bless

Michael, it sounds like you're doing great. Especially with the report the doctor gave you at first diagnosis. I remembered reading not much hope for you. Wow, don't we serve a mighty God.

I started out being on oxygen at night at 2 l around 2018 or 2019. About a year or so later, added O2 when exerting myself and was at 2l. After being sick with sinus infections, bronchitis and Covid, had to go to 4 to 6 l during the day. My night time O2 increased to 3 l at night after being tested. After being diagnosed with PAH and starting Opsumit, I have improved during the day and only need 1.5 to 2 l when exerting myself. I have also listened to considerable weight and have increased my activity, which has helped to lower my need. Last couple of six minute walks have been great.

@A myPHteam Member, when I was tested last to renew my oxygen, they had me do a treadmill test with incline instead of the flat 6min. walk. With the flat walking mine only drops to about 92 now, but on the incline slow walk it would drop into the mid 80's. My pulmonologist is the one that suggested the oxygen during exercise and at night, started with 2 L but it is now at 3L, to help me stay active without it wearing me out so badly. I still recover quickly but stairs, walking while carrying something drops my oxygen level, I stop and do some breathing exercises and I recover pretty quickly but then I just feel more tired. I think it will depend how your doctor writes up how much it has shown to help you. But I have the interstitial lung disease and pulmonary fibrosis with just the mild PH. Advocate and ask your doctor to go to bat for you. My pulmonologist has a clinical assistant that spends her time with the insurance companies. It is crazy if the doctor feels you need it, you should be able to get it, but that isn't how it works anymore. I pray you get to keep oxygen.❤️🙏

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A myPHtea...

Apparently I lose my o2 in my blood stream doing daily activities. If feel light headed or o2 Stats get low I have a portable. However at night time I have an oxygen machine that set at 2 but it feeds thru my bi pac machine .
It's better to use it than try go without it !