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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myPHteam Member asked a question 💭
Colorado Springs, CO
October 27, 2025
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A myPHteam Member

I take furosimide and metalozone.

October 29, 2025
A myPHteam Member

I haven’t had that since I was first diagnosed with PAH and was in the hospital. I take diuretics to keep edema in check. I take spironalactone in the morning and furosemide in the evening.

October 27, 2025
myPHteam

Has anyone experienced mild pulmonary edema and what treatment worked for them?

Pulmonary edema, which involves fluid buildup in the lungs, can occur with pulmonary hypertension. While members on myPHteam share their experiences with fluid retention and swelling, treatment typically involves diuretics (water pills) to help Show Full Answer

Has anyone experienced mild pulmonary edema and what treatment worked for them?

Pulmonary edema, which involves fluid buildup in the lungs, can occur with pulmonary hypertension. While members on myPHteam share their experiences with fluid retention and swelling, treatment typically involves diuretics (water pills) to help remove excess fluid from the body.

For pulmonary venous hypertension (PVH), which can cause fluid retention, treatment often includes:

* Diuretics to address fluid buildup
* Medications to control blood pressure (ACE inhibitors, ARB blockers, beta-blockers)
* In some cases, surgery to repair heart valves if they're causing the problem

One myPHteam member shared: "I didn't watch my fluid intake and weight daily, and between appointments I gained 10 pounds and wasn't feeling very good." This highlights how important monitoring can be.

Another member mentioned going on oxygen therapy helped them feel much better when managing their symptoms.

It's important to watch for warning signs like frequent cough, shortness of breath at rest, or rapid weight gain (more than 2-3 pounds in a day or 5 pounds in a week). If you experience these, contact your doctor right away.

Your treatment plan will depend on what's causing the edema and how severe it is. Talk with your healthcare team about the best approach for your specific situation.

October 27, 2025

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