My insurance wouldn't accept Adempas. I just started taking Sildenafil.

I was recently diagnosed with cteph also. There is a cure if you can find a facility that will do it. I recently started Adempas (riociquat)

Also, the patient support group meets on the 23rd and you can get that information on the PHA website phassociation.org go to Support and then Support groups. Then please select view calendar and check on the 23rd for the patient virtual support group meeting. Here, people with all types of pulmonary hypertension, meet, and talk for a couple hours once a month.

I recommend the pulmonary hypertension association CTEPH virtual support group. They meet every month and you will get to talk to other people who have the same form of PH that you have

RSVP to Missy Storm at (Email address can only be seen by the question and answer creators) please include CTEPH in the subject line

Join this monthly telephone support group to connect with other CTEPH patients and discuss struggles and triumphs and receive support and advice from others experiencing the same challenges.

Meeting information will be sent to your email address when you submit your registration.

When 10/21/2025 8:00 PM - 9:00 PM
Eastern Daylight Time