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Newly diagnosed used with PAH less than 6 months ago

August 30, 2025
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A myPHteam Member

I had to have a sleep study done shortly after my diagnosis of PAH. Although the pulmonologist was fairly certain my PAH was caused by an autoimmune disease I have, she said she had to rule-out other causes. She also said a significant number of people with any form of PH have sleep apnea too. Even if PH is not caused by sleep apnea; sleep apnea can increase pulmonary pressures and/or make your heart work harder and prematurely increase mortality incidence.

September 1, 2025
A myPHteam Member

Quite often sleep apnea affects PH and thats the reasoning he probably has for wanting a sleep study. Have you worn an oximeter at night to see your levels? If so that would be reasoning for nocturnal O2. I wear O2 24/7 and at night if you move the ring around your tubing up it makes it easier to stay on.
These are questions to ask your cardiologist.

August 31, 2025
A myPHteam Member

Sleep apnea can co occur with PH & can make breathing even more difficult

September 2, 2025
A myPHteam Member

I actually wear the cannula on top of my head at night. I just adjust the tubing on top of my head snd it works perfect for me.

August 31, 2025
A myPHteam Member

I was diagnosed with sleep apnea just months before my PAH diagnosis. With PAH I am on oxygen 24/7. The oxygen is connected to my bipap machine. I don't even realize I have any of it on at night. I have become very adapted to it. I know that is not the norm as most people have a lot of problems with cpap and I am very grateful. I am very blessed.

September 1, 2025

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