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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
August 4, 2025
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A myPHteam Member

Absolutely! You need a good pulmonologist and cardiologist that have a good understanding of how to manage PH whether you have PAH or PH from another group. Regardless of which group you have, PH affects not only the vessels in your lungs and your pulmonary artery but your heart as well.

August 6, 2025
A myPHteam Member

Good morning Terri, yes it is very important both PH and PHA patients see and go to a special PH Clinic! I know I have a long drive to my PH Clinic it is a two in a half drive one way. But it is well worth it. You want the best team of Drs working with you!!@ God bless you Terri. πŸ™β€οΈπŸ™Œ

August 5, 2025
myPHteam

Yes, it's absolutely crucial for anyone with pulmonary hypertension to be treated by a specialist. Since PH is a rare disease, most general doctors don't have extensive experience treating it. Having an experienced specialist can significantly improve your quality of life and potentially your life expectancy.

Many myPHteam Show Full Answer

Yes, it's absolutely crucial for anyone with pulmonary hypertension to be treated by a specialist. Since PH is a rare disease, most general doctors don't have extensive experience treating it. Having an experienced specialist can significantly improve your quality of life and potentially your life expectancy.

Many myPHteam members have shared that finding the right specialist made a dramatic difference in their treatment outcomes. Some even discovered they were previously on incorrect medications before seeing a specialist. Here are some ways to find a qualified specialist:

β€’ Ask your primary care doctor or pulmonologist for a referral
β€’ Contact major medical centers in your area
β€’ Be prepared to travel - some patients drive an hour or more to see their specialist
β€’ Don't hesitate to seek a different specialist if your current one isn't meeting your needs

Remember: Your health comes first, and finding the right specialist is worth the effort even if it takes some time.

August 4, 2025
A myPHteam Member

Yes, absolutely. Especially today when there is do much research going on dealing with Groups 2 through 5. Only a PH specialist will be on top of it all.

I see a cardiologist, a pulmonologist and go to a PH Clinic. All 3 communicate with each other and are instrumental in my care. I am Group 2 PH.

August 4, 2025
A myPHteam Member

Hey Terri. Im Willie and that's a good question. I've got a lung disease and I've got two doctors for it. One's actually a lung specialist and the other one is a cardiologist that specializes in PH and PAH. I've had several right catheterizations and a few on the left side. A couple of times that they did it they found a few aneurysm but they were able to fix them w/o surgery.

August 4, 2025

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