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April 25, 2025
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Answer Summary

Members shared their experiences with exercise-induced pulmonary hypertension, with many describing how their symptoms and pressures spike... Read more

Members shared their experiences with exercise-induced pulmonary hypertension, with many describing how their symptoms and pressures spike specifically during physical activity like walking, climbing stairs, or bike riding during cardiac catheterization tests. Several members discussed diagnostic challenges, including doctors who dismissed the condition despite measurable evidence, difficult-to-read echocardiograms due to fibrosis, and specialized stress tests that revealed elevated heart rates and pressures during exertion. A recurring theme was frustration over years of reporting exercise-related fatigue and shortness of breath before being properly tested, with members offering mutual support and encouragement to keep advocating for appropriate diagnostic procedures.

A myPHteam Member

Myspicely thank you for asking the question

April 25, 2025
myPHteam

During normal exercise, lung blood pressure (mPAP) should stay below 30 mmHg. In people with exercise-induced pulmonary hypertension, these pressures can rise abnormally high during physical activity.

The increased pressure affects blood flow through the lungs and can limit how long you can exercise. It also impacts Show Full Answer

During normal exercise, lung blood pressure (mPAP) should stay below 30 mmHg. In people with exercise-induced pulmonary hypertension, these pressures can rise abnormally high during physical activity.

The increased pressure affects blood flow through the lungs and can limit how long you can exercise. It also impacts cardiac output - which is how much blood your heart pumps and how much oxygen is being used by your body. If you're concerned about your exercise tolerance or experiencing symptoms like shortness of breath or unusual fatigue during activity, it's important to work with your healthcare team. They can perform specific tests to measure your pulmonary pressures during exercise and adjust your treatment plan accordingly. Several medications are available that may help manage exercise-induced PH, including ambrisentan, tadalafil, rociguat, and sildenafil.

April 25, 2025
A myPHteam Member

Hey Brenda. My oxygen levels are always pretty good. Never dip below 94 since I moved to Virginia.

My heart rate races with walking. I have trouble climbing stairs. Things of that nature. I get fatigued very quickly when I up walking around. I kept telling my Dr that.

He finally did an Echo Stress Test, which I couldn’t complete because pulse elevated too quickly. Then he decided upon the Cardiac Cath Stress Test.

Hope this helps love 💞

May 3, 2025
A myPHteam Member

Mspicely1, what made them decide you needed to do an exercise cath? Most of my SOB is when I do things, exercising, house work, going up inclines, etc. I think my numbers were so low for mild PH in my cath last summer they didn't think it was necessary at this time to test it further. I will have my 6 month PFT and 6 min.walk in June along with my Pulmonologist and Rheumatologist checkup on June 5th. The 6 min. walk, walking flat doesn't really bother me too much. I can usually do that pretty well. My oxygen level may go to 92 or 93 but then recovers very quickly. We will see how that is still going. There have been some other on here with Exercise Induced PH, not many, but they may know more about it. You keep going and let us know!!❤️🙏

May 3, 2025
A myPHteam Member

Hi Mspicely1, I asked the new PH specialists if he thought my mild PH might be exercised induced since that is when my oxygen levels drop the most, he didn't seem to think it was my case, so he just had another echo done and every echo I have says very difficult test, hard to visualize certain areas due to my fibrosis. So I am like, how about trying a different test? Mine is usually a wait and see type thing.

April 27, 2025

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