Answer Summary
Members shared their frustration over being misdiagnosed with asthma when they actually had pulmonary hypertension or other conditions, with... Read more
I believe that I was misdiagnosed for years…
I did the Methacholine Challenge and it shows that I don't have asthma, but that I have vocal Cord Dysfunction. Asthma medication doesn't work, but the pulmonologist still asks if I'm taking them. When I Am sick is the only time I benefit from them.
I have found that many pulmonologists will jump into a diagnosis of asthma rather than admit they don’t have an answer. Back in NY I was diagnosed with asthma by no less than 4 doctors till another doctor had me take the Methacholine Challenge which proved it wasn’t asthma. It took going to another 2 or 3 doctors till I was correctly diagnosed with Bleomycin Pulmonary Toxicity.
(That is totally separate rom my PH which I was diagnosed with about 19 years later
If the Methacholine challenge was negative, you don’t have asthma. I had that test also over 2 decades ago when I eventually got diagnosed with Bleomycin Pulmonary Toxicity which I am in remission for. Totally unrelated to my PH which got diagnosed in 2023.
(Bleomycin is a chemo drug)
I had methacholine test done and they said it was negative. I was leaving the hospital and before going outside I could tell with breathing wasn't normal. I got home and 30 minutes later diarrhea,but yet test negative. This was about 2 years ago. I am on inhalers but never told if it's asthma.