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A myPHteam Member asked a question 💭

Just curious , I use Tylenol. As an asthmatic, gabapenton (sp) is black listed. Sometimes I wonder if I need more. I know I've spoken with my pcp and he's said that prescribed pain med is not recommended because it'll cause heart rate issues, I believe it'll bring it down to low.
Thank you for your input.

April 2, 2025
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Answer Summary

Members shared a wide range of pain management strategies in response to someone asking what works beyond Tylenol, given their asthma and... Read more

Members shared a wide range of pain management strategies in response to someone asking what works beyond Tylenol, given their asthma and heart rate concerns that rule out many options. Several members reported relying on Tylenol or Tylenol Arthritis as their only safe choice due to blood thinners, kidney issues, or medication interactions, while others found relief through topical Voltaren, tramadol, gabapentin for nerve pain, ibuprofen, CBD oil, medical cannabis, cortisone injections, or carefully timed combinations of over-the-counter medications. A recurring theme was the challenging trade-offs that come with pulmonary arterial hypertension and other conditions, including medication restrictions, side effects like fogginess or tremors, the difficulty of accessing stronger prescriptions from cautious doctors, and the delicate balance between managing pain and protecting lung function, heart rate, kidneys, and overall quality of life.

A myPHteam Member

I use prescription cannabis gummies. They work great. My wife also uses them and they are the best thing she ever found. You do have to experiment to get the proper dose! Start small dose! It took us about a week to get it right. Be sure to use medical grade and not any of this stuff they sale at smoke shops! This is a natural product, but has amazing effects! Get a prescription!

April 3, 2025
A myPHteam Member

After those big pharma "Sacklers", doctors are so concerned about their licenses, they won't prescribe pain meds unless you're dealing with something excruciating!!! God help
us all🙏🏻

April 8, 2025
A myPHteam Member

I used to be on a severe cocktail of pain relief. But it ended up that it was interfering with life, living, and staying awake. Esp the codeine parts! I have cut off gabapentin. With other considerations I am not taking any other prescriptions for pain. Getting off them was one of my goals for fewer neurologically damaging/altering medicines. They have their uses, but it should not be a regular every day event. I have what I like to think of as normal days. Right now I have a baby aspirin in the morning (a heart health consideration too), a Ibuprofen with lunch, and then I coast until bedtime when I can have an aspirin before sleeping. It's been about a year of work getting off med-medicines/ I have switched to more nutritional supplements like magnesium where I had a deficiency which is helping with healing and maintenance. I also have a glucosamine chondroitin which is for the weak and stiff joints. I find with the added exercise I do have less aches and pain and neuropathy. There is some value in keeping the whole body in motion which is something I was able to neglect far too often. It is more about being able to keep active than eliminating pain. So much pain meds can make it hard to judge just how much pain is unusual, and how much is normal stress and strain, and when to go to the hospital for it. I am better at judging when to be concerned or not. I can separate normal and incidental pain apart from needing intervention. I am maintaining a good balance, and the activity after having so little make me feel better inside. A bit of an accomplishment which is a quiet pat myself on the back time. Not every pain needs a pill, sometimes it only needs time. For me on this side of the consideration, my self pain assessment was pretty exaggerated much of the time. Feeling, plane feeling, is not ache or pain: you don't need to manage that unless you make yourself hyper sensitive by becoming numb all day. I know not everyone goes through this, but it is wise to consider the possibility and check yourself occasionally.

April 4, 2025
A myPHteam Member

I can only take Tylenol Arthritis.

April 4, 2025
A myPHteam Member

I'm coming into this thread late. I understood Gabapentin to only be good for NERVE pain. That's what I was on when I had my Internal Shingles bout. I'm allergic to Naproxen and am on Eliquis so I can only otherwise take Tylenol.

Be sure to check with your PH Care Team before trying anything else. I also briefly was under the care of a pain management doctor for my back He sent me to physical therapy which briefly helped. I haven't gone back to see him as I do not want steroid injections into my spine and I do not want to consider back surgery.

April 3, 2025

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