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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myPHteam Member asked a question ๐Ÿ’ญ
Richmond, VA
November 9, 2024
 · 
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Answer Summary

Members confirmed that nasal congestion is a common side effect of several PAH medications, including Sildenafil, Tadalafil, Opsumit,... Read more

Members confirmed that nasal congestion is a common side effect of several PAH medications, including Sildenafil, Tadalafil, Opsumit, Ambrisentan, Bosentan, and Letairis, caused by the vasodilation these drugs create to improve blood circulation. Several members shared practical relief strategies, including saline nasal sprays, Arm & Hammer Simply Saline with Eucalyptus, Flonase, and nasal irrigation, while strongly cautioning against decongestants containing pseudoephedrine or phenylephrine, which can dangerously constrict blood vessels and worsen pulmonary hypertension. A recurring theme was the importance of checking with doctors or specialty pharmacies like Accredo before trying any new treatments, as PAH patients have unique medication restrictions that general advice may not address.

A myPHteam Member

My PH Drs and Accreddo told me to never take anything with a decongestants in it.

November 9, 2024
A myPHteam Member

it's also a side effect f Opsumit. Made me crazy till I found arm & Hammer NIGHTTIME Simply Saline nasal mist with Eucalyptus. It's the only thing that cleared my sinuses and my doctor had approved it for me for daytime use as well.

November 9, 2024
A myPHteam Member

A side of effect of Opsumit and others! Flonase and AYR saline solution!(the jelly type)

November 10, 2024
A myPHteam Member

And here's an AI summary cut and paste:
People with pulmonary hypertension (PH) should avoid decongestants that contain pseudoephedrine or phenylephrine, as they can increase lung pressure and worsen PH. Decongestants cause blood vessels to constrict, which can increase blood pressure and heart rate, and cause irregular heart rhythms and palpitations.
Some alternatives to decongestants for people with PH include: Diphenhydramine (Benadryl) and Guaifenisin (Robitussin or Mucinex).
Some other medications to avoid include:

Medications that contain ephedrine
Medications that contain sulfites
Sinus medications, which often contain decongestants

If you have a cough or weakness and are unable to take your PH medications, you should contact your doctor.

November 9, 2024
A myPHteam Member

@A myPHteam Member. Please talk again to your doctor. PH patients are NEVER supposed to take anything with a decongestant in it.

November 9, 2024

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