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A myPHteam Member asked a question πŸ’­
Western PA

I am newly diagnosed with PH (by echocardiogram), I have multiple health issues. I can barely function with household duties .I am scheduled for a V/Q scan in Dec, and am not on any meds for PH yet. Today I was really down in spirits. Any insight, please

October 4, 2024
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Answer Summary

Members warmly welcomed a newly diagnosed pulmonary hypertension patient experiencing severe all-over pain, shortness of breath, and... Read more

Members warmly welcomed a newly diagnosed pulmonary hypertension patient experiencing severe all-over pain, shortness of breath, and difficulty with daily tasks, reassuring her that many have seen significant improvements once established on the right medications. Several members offered practical guidance on understanding echocardiogram results, specifically how to locate the systolic pressure number (often labeled as RVSP) and what those numbers typically indicate, with ranges like 20-25 being normal, 30-35 suggesting monitoring, and 40-45 warranting a right heart catheterization for definitive diagnosis. A recurring theme was that pulmonary hypertension diagnosis requires multiple tests including the right heart cath as the gold standard since echo results can vary significantly from actual pressures, and members encouraged staying patient through the testing process while maintaining hope that treatment will bring meaningful relief.

A myPHteam Member

Kay: I thought I would type some more info for you before I go to sleep.

According to my primary cardiologist, on an echo, if the systolic number was 20-25 it was to be considered "normal; between 30-35 would mean "watch and wait", between 40-45 would mean get a right heart cath to confirm a PH diagnosis. My initial systolic pressure on the echo was 78.

The Right Heart Cath, which follows the echo, is the only way to get a firm diagnosis of any of the PH forms as echo numbers are not reliable or completely accurate. My first RHC systolic number was 56 or 58, I forget. But clearly a 20 point spread from my echo.

October 15, 2024
A myPHteam Member

I will give an update as soon as I know the results. Hopefully I will be able to add Uptravi after the cath! I can always stop taking it if it doesn’t work for me. πŸ™πŸ»

November 8, 2024
A myPHteam Member

Definitely!πŸ™πŸ»

October 26, 2024
A myPHteam Member

Jean: Good luck with that! Keep us posted.

October 26, 2024
A myPHteam Member

Hi Heather 10. I am scheduled for a follow-up RHC in November in hopes of adding Uptravi. πŸ™πŸ»β€οΈ

October 25, 2024

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