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A myPHteam Member asked a question 💭
Scottsdale, AZ

WHOA!!!!! I tell you right now I would rather have an RHC than this...and I have to have 1 every 4 months.

So, The Mayo Clinic developed this protocol and they shared it with my hospital, Honor Health John C Lincoln. There are currently only 5 hospitals in the state of Arizona that have special focus on PH...Mayo and JCL are 2 of them Honor Health Shea is beginning to get trained and modified to become another. When I had asked my specialist what was different about the PH Protocol bit, all he… read more

August 30, 2024 (edited)
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Answer Summary

Members rallied around someone describing their intensive 90-minute PH Protocol Echocardiogram at Honor Health, which included IV contrast, a... Read more

Members rallied around someone describing their intensive 90-minute PH Protocol Echocardiogram at Honor Health, which included IV contrast, a bubble test to detect heart defects, and significant physical discomfort, with many expressing sympathy and appreciation for the detailed sharing that helps prepare others for similar procedures. Several members compared their own echo experiences, noting differences in duration, contrast use, and protocols across hospitals like OHSU, Froedtert, and Mayo Clinic, while offering practical encouragement to focus on the valuable diagnostic information being gathered. A recurring theme was the importance of understanding test results, advocating with doctors to explain differences between regular and specialized echos, and finding small comforts like rest, wine, and supportive community after difficult medical experiences.

A myPHteam Member

I had never heard of it either till my specialist told me he wanted my echo done in the hospital and not in a cardiology office any more. I don't know if The Mayo invented the concept of a PH Protocol echo but theirs is the protocol my hospital is following. I asked the technician how long the hospital has been doing this protocol and he said he thought since 2022. And I have no idea how many other hospitals are doing this protocol or if they have their own versions. It would be interesting to find out.

I also don't know if this protocol is designed just for Group 2 patients or if it's supposed to be used across the board. I'll actually try to do some research on that.

And it will be a nice quiet holiday weekend over here for us. I am determined to get back on my treadmill and get my dusting done!

August 30, 2024
A myPHteam Member

Heather, looks like you were aware of most of this and your bubble test was negative, I had one of those in my last stress echo before I had my cath, mine was negative too, the RVSP of 55 is elevated, all the mild to moderate valve regurgitation have to be watched. Make them explain the difference of the regular echo and this one to show the difference in the RVSP numbers. The doctors look at things differently than we do, to them little changes are all good or stable, we want to know what are we looking for going forward. Looks like you are on top of everything you can do at this time, try to relax and have a great Labor Day weekend!!

August 30, 2024
A myPHteam Member

Jean: Thanks for reminding me to put a positive spin on this. It just took 1 glass of wine to recover so I’m doing okay

August 30, 2024
A myPHteam Member

Part of the results were already posted on the portal. I won't be speaking with my doctor till at least Tuesday or Wednesday due to the holiday weekend. But so far it doesn't look like I have any surprises in store for me. And if I'm reading correctly, there aren't any holes in my heart. My systolic pressure reading is much lower than in my last regular echo which stated 78! II guess the diuretic and Jardiance are working. Here's a copy and paste:
• Hyperdynamic left ventricular ejection fraction estimated. Ejection
fraction: 70%. No wall motion abnormalities.
• Normal left ventricular diastolic function.
• The right ventricle cavity is dilated with normal systolic function.
• The aortic valve is trileaflet with mild to moderate aortic
regurgitation.
• There is mild to moderate tricuspid valve regurgitation.
• The estimated RVSP of 55 mmHg suggests significantly elevated pulmonary
artery pressures.
• Negative saline contrast study for a right to left intracardiac shunt.

August 30, 2024
A myPHteam Member

Oh Heather! Sounds challenging but just think of all the great info they collected today to help with your care. I’m so happy for you to be finished with that echo today. Looks like your next one might just fall during the holidays🙄🤦‍♀️. I appreciate you sharing your experiences so others can be truly prepared when they have to go thru the same. Thank you! 🙂

August 30, 2024

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