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My pain is sometimes unbearable in waist down (back, hips, both knees and feet at times).

July 7, 2024
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Answer Summary

Members rallied around someone questioning whether their severe lower-body arthritis pain might be rheumatoid arthritis rather than... Read more

Members rallied around someone questioning whether their severe lower-body arthritis pain might be rheumatoid arthritis rather than osteoarthritis, with the overwhelming advice being to request a blood test and see a rheumatologist to confirm the type, as RA is autoimmune while osteoarthritis is typically bone-on-bone degeneration. Several members shared their own journeys with overlapping conditions like PH, knee replacements, bursitis, sciatica, and the frustrating catch-22 of needing to lose weight for surgery but being unable to exercise due to pain, recommending options like aquatic physical therapy, cortisone or gel injections, unloading knee braces, and non-weight-bearing exercises to manage symptoms in the meantime. A recurring theme was the exhausting reality of living with multiple, intertwined health challenges, the importance of advocating for thorough testing with specialists, and the comfort of a community that truly understands what it means to feel stuck in a body that no longer cooperates.

A myPHteam Member

A rheumatologist will be able to tell you, if you have RA.

July 8, 2024
A myPHteam Member

I've had rheumatoid arthritis since 1983. Little did I know that having an "auto-immune disease" can be a symptom of "bigger things to come?" PH? Since I was hospitalized 2 years ago and had extreme shortness of breath, and they consulted a pulmonologist. He then mentioned pulmonary hypertension? I never heard of it before? Well, I had problems from the surgery and they focused on getting me thru that first. I had pneumonia in February and they sent that pulmonologist in to see me again. That started the ball rolling and I had tests and a right heart cath last month. Yesterday I went to my cardiologist and he confirmed what I knew all along...pulmonary hypertension. I had a Lot of symptoms too.

July 10, 2024
A myPHteam Member

Pain mgmt dr. Have him put describe aquatic physical therapy. One hour twice a week. You won’t believe the relief. I promise.

July 10, 2024
A myPHteam Member

Alex, I actually was thinking of a mild yoga class, I just saw one advertised near me. Not sure if I will or not.

July 8, 2024
A myPHteam Member

Sorry, auto immune condition.

July 7, 2024

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