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Hi, This Is Scott - Does Anyone Have CTEPH And Can They Share How Long They Have Had It And What Medications Have Helped? Thanks!

A myPHteam Member asked a question 💭
Fishers, IN

I was diagnosed in 2021 and I'm currently taking Tadalafil. The medication the doctors suggested initially had a list price of over $12,000 each month!

June 6, 2024
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myPHteam

Hi Scott! While I can't share personal stories, I can tell you that people with Chronic Thromboembolic Pulmonary Hypertension (CTEPH) often use various medications to manage their condition. Some of these include:

- Phosphodiesterase inhibitors (e.g., sildenafil)
- Endothelin receptor antagonists (e.g., Tracleer [bosentan] Show Full Answer

Hi Scott! While I can't share personal stories, I can tell you that people with Chronic Thromboembolic Pulmonary Hypertension (CTEPH) often use various medications to manage their condition. Some of these include:

- Phosphodiesterase inhibitors (e.g., sildenafil)
- Endothelin receptor antagonists (e.g., Tracleer [bosentan])
- Intravenous prostacyclins (e.g., Flolan [epoprostenol] or Orenitram [treprostinil])
- Soluble guanylate cyclase stimulators (e.g., Adempas [riociguat])

For more personal experiences, you might want to join a community like myPHteam, where over 37,800 members share their stories and advice.

June 6, 2024

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