Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I have PAH and Scleroderma. Sit most of the day, stay home a lot.

February 10, 2024
 · 
Reactions

Answer Summary

Members shared creative ways to stay engaged when PAH and Scleroderma make walking difficult, with popular activities including jigsaw... Read more

Members shared creative ways to stay engaged when PAH and Scleroderma make walking difficult, with popular activities including jigsaw puzzles, reading on Kindle, streaming international TV shows, coloring, chair yoga, dance videos, word searches, and online shopping. Several members emphasized adaptations that work around limited mobility, such as using crockpots for cooking, setting early alarms to time diuretic medications, and attending senior centers for social connection and gentle games like carpet bowls. A recurring theme was finding joy and purpose in slower-paced hobbies while celebrating small victories, like one member who gradually worked back up to 20-minute walks after starting triple therapy with Uptravi.

A myPHteam Member

Hi Dianne2 I do some reading, ( usually fall asleep). listening to music, do books called wordsearch, easier to do than crosswords. I can't think of words now, but wordsearch keeps the eye/brain thing going. I do go to an active Seniors club once a week (not many are that active) but they like the company and board games. I manage to play carpet bowls and bingo. we always get a laugh. It gets me out of the house. I am lucky I can still drive.

February 13, 2024
A myPHteam Member

Just so you know some people have a very hard time with uptravi. Especially when increasing doses side effects can be very bad. But with my Drs permission I stayed on a dose for 4 weeks so my body could adjust and it helped me so much. So if your Dr does put you on it. That is something to think about. 🤔

February 10, 2024
A myPHteam Member

I take sildenafil,opsumit,uptravi and furosemide. Sildenafil and opsumit were not helping at all I was getting worse than They put me on Furosemide and uptravi. And doing so much better. I still am on the others I guess I needed triple therapy. I do wish you the luck. And you will be able to do things you enjoy.🙂

February 10, 2024
A myPHteam Member

I started doing jigsaw puzzles during the Pandemic and it is a real hobby. I do 2 or 3 a week. I read from my kindle. And I watch tons of British, Canadian and Australian tv shows through streaming channels. I also cook more but since I can’t stand for too long I mainly use crockpots now.

February 10, 2024
A myPHteam Member

I used to teach dancing when I was in my 20s. (I used to regularly dance 3 to 4 hours a night.) Now I can barely get through a single slow dance with my husband.

February 13, 2024

Related Questions

View All
A myPHteam Member asked a question 💭
Pittsburgh, PA

A myPHteam Member asked a question 💭
Surrey, BC

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In