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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myPHteam Member asked a question 💭
Lincoln, NE

So I went through a lot of testing and scans at my cardiologist and pulmonologist and they agreed that I no longer have pulmonary hypertension, which is great, but they said I still have stiffening of the heart, so I was wondering how serious that was.

September 10, 2023
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Answer Summary

Members responded to a question about how serious stiffening of the heart is, offering both encouragement and practical guidance. Several... Read more

Members responded to a question about how serious stiffening of the heart is, offering both encouragement and practical guidance. Several members explained that a stiff heart requires more effort to pump blood efficiently and, if unmanaged, could progress to congestive heart failure, while noting that medications, regular exercise, and monitoring can make it manageable. A recurring theme was the importance of self-advocacy, asking questions at cardiology appointments, and never ignoring symptoms.

A myPHteam Member

Eric, when the heart muscle stiffens, it takes more effort for the heart muscle to pump efficiently. If not well managed, this could eventually progress to congestive heart failure. Fortunately, your doctor is aware that you have this issue. With medications, good self-care, regular exercise, and monitoring this condition can be manageable. If you have not done so already, schedule an appointment with your cardiologist to ask questions and find out what the treatment options are.

September 10, 2023
A myPHteam Member

Eric, I would not settle for a diagnosis of "stiffening of the heart" .I have heart problems along with my IPF and PH. It has a name and there are drugs prescribed to handle it. Just my opinion but it sounds like you need a good cardiologist.

September 11, 2023
A myPHteam Member

Stiff heart is a condition that can lead to heart complications, including PH. Your MD should be able to guide you through this as far as meds and other treatment. I'm assuming you've had an echo and maybe right heart cath to rule out PH at this time. This said, never ignore your symptoms....be your own advocate.

September 13, 2023
A myPHteam Member

I had no idea that this was possible. God bless you and good luck managing the rest of your life!

September 10, 2023
A myPHteam Member

If your heart can't pump blood through out your body because it's too tight is rather serious. PAH doesn't just go away, probably a wrong diagnosis.

October 25, 2023

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