Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
April 30, 2023
 · 
Reactions

Answer Summary

Members connected over joint and muscle pain experiences while taking Sildenafil for pulmonary arterial hypertension, with several sharing... Read more

Members connected over joint and muscle pain experiences while taking Sildenafil for pulmonary arterial hypertension, with several sharing that their doctors confirmed this is a common complaint among patients on the medication. Many members found relief through Lyrica or gabapentin for nerve-related pain, though some discovered their discomfort was actually caused by arthritis rather than their medications. A recurring theme was the value of gentle daily exercise like recumbent biking to keep joints lubricated and functional, staying in close communication with doctors about pain management options, and supporting one another through the physical challenges of living with PAH.

A myPHteam Member

Michael, I have really bad rheumatoid arthritis, which is what kicked off my PAH in the beginning. You may want to ask your doc to investigate your pain snd locations further. Did the pains really only start once you began Sildenafil?

April 30, 2023
A myPHteam Member

Perhaps the only thing I can recommend, aside from a good diet, is regular exercise, which would be long time gentle exercise, not the kind that makes you exhausted or loose your breath. Bikes or recumbent bikes if you are a falling hazard and need to stay indoors for whatever reason to keep the joints, muscles, and ligament/.tendon assemblies well oxygenated, lubricated, and functional DAILY! i HAVE A MEMBERSHIT IN THE LOCAL GYM. It is paid through insurance. There I am inside, in safety, and get all the stretching and extensions I need to keep everything in order. If I miss a week alone, I sure do feel it! Try and see if it helps. Even a public gym if there is a class offered in your school district would be a good place to have a trial. Good luck my friend!

September 10, 2023
A myPHteam Member

Michael….if you & your wife had a penny for each time I have thought of you……truely all of your pickers would be full!!!!!! Have been running back & forth to the three different doctors…..& getting blood work & different test as warrented. I am so happy to hear your wife is progressing along…..that is good news!!!!!!!! I know you must get tired at times Michael……try to get as much time as you feel you can afford to get. Take care.my very special friend…..so happy I can play catch up with your daily devotionals…..I have missed them also 😃

May 7, 2023
A myPHteam Member

We are doing well Helen! God has so Blessed us! I have been concerned about you but I figured you were just busy with Spring! Marlene got her cast of and is in a boot. Praying Tuesday she will be out of the boot and on to a brace. We are now moving around more and going out to eat some so I am not in the kitchen all day. I really need a vacation, step meter has said 3 to 4 miles a day in the house! You have not been ill I pray? You are always in my prayers! How you feeling? God Bless! Let me know how you are?

May 7, 2023
A myPHteam Member

Thanks Willie, I started taking Opsumit last night. Wish me luck!

May 3, 2023

Related Questions

View All
A myPHteam Member asked a question 💭
Lakeland, FL

A myPHteam Member asked a question 💭
Tampa, FL

A myPHteam Member asked a question 💭
Vernal, UT