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A myPHteam Member asked a question 💭
Lincoln, NE

Work has become harder and I’ve missed some time due to pain and feeling awful as well as going to doctor’s appointments, but when do I throw in the towel? I get so much fulfillment from work out of helping others (I work with dual diagnosis mental illness/substance abuse disorder individuals) as well as so much of a social aspect out of working. Not to mention I barely scrape by on my income, I don’t know what I would do for the years it takes to get social security, if I even get it before I… read more

April 16, 2023
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Answer Summary

Members rallied around someone grappling with the difficult decision of when to stop working due to worsening health, offering both practical... Read more

Members rallied around someone grappling with the difficult decision of when to stop working due to worsening health, offering both practical guidance and emotional solidarity. Several members recommended applying for Social Security Disability Insurance, noting that SSDI allows part-time work within income limits, and emphasized the importance of involving a primary care doctor to document work limitations and navigate the often-denied-then-approved appeal process. A recurring theme was the deep grief of losing a job that provides purpose and connection, balanced with the reality that rest and self-care must eventually take priority, with members encouraging patience, self-compassion, and exploring all available disability and Medicare options.

A myPHteam Member

Eric, I am so sorry to hear about your job situation. It must be quite a blow to you since it was something you really enjoyed. I hope that this time will give you an opportunity to rest and plan your future activities. Please investigate disability coverage from Medicare too.

May 21, 2023
A myPHteam Member

I retired on disability when I was diagnosed with chronic COPD. When I became retirement age at 62 I received my social security benefits. After Losing a lot of time out of work I was sent to a disability doctor for tests recommended by my primary physician
Let your primary Dr know how you have a hard time trying to work.

April 19, 2023
A myPHteam Member

You might consider looking into Social Security Disability Insurance. I don't know the particulars, but even when you are collecting SSDI you are allowed to still work. There are income limits. Maybe you will find that you can manage on SSDI and still work a part-time job doing what you love.

April 16, 2023
A myPHteam Member

@A myPHteam Member I am sorry to hear about your job loss. I know you really enjoyed your job. Few realize what a physical toll PAH takes on us.

May 21, 2023
A myPHteam Member

I lost my job, so I assigned a representative to apply for social security for me. I am on unemployment now. I’ve been getting more rest.

May 20, 2023

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