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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone Hearing About New Drug Trials?

A myPHteam Member asked a question 💭
Colorado Springs, CO

Hello my PAH family has anyone heard of new clinical trials coming out that may have the ability to cure this disease? My Drs are at university of anschutz in Denver Co and they have mentioned this To me but no dates or names of drugs yet have any of you been in clinical trials before I pray I am approved to try something new I'm currently on remodulin via pump tadalifl and opsumit when I was diagnosed the hospital thought I wasn't going to pull through after finally being approved for the remod… read more

March 14, 2023
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A myPHteam Member

I will most definitely keep everyone on her updated whenever my team lets me know more information I'll pass it onto everyone on here!!!🙂

March 14, 2023
A myPHteam Member

There is a drug scheduled to be approved by the FDA next year. It's called Sotatercept. It is very promising in the it reduces pulmonary vascular resistance. That is it inhibits that process which causes PAH.

March 30, 2023
A myPHteam Member

Good morning Tiffaney. I also have IPAH and take Opsumit and Adempas but thankfully I don't need Remodulin (yet). I have heard about one new treatment recently called Sotatercept but nothing that is actually considered a cure. I would be very interested in learning more if you can find out drug names. Thanks

March 14, 2023 (edited)

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