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Side effect on Opsumit:

A myPHteam Member asked a question 💭
Manalapan, NJ

Has anyone had weight gain , blowing up of your legs , liver problems or heart failure from taking Opsumit?
I was told that I should go on it.
Joan

February 22, 2023
 · 
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Answer Summary

Members shared mixed experiences with Opsumit for pulmonary arterial hypertension, with some reporting no issues at all while others described... Read more

Members shared mixed experiences with Opsumit for pulmonary arterial hypertension, with some reporting no issues at all while others described significant leg swelling that led them to discontinue the medication and switch back to alternatives like sildenafil. Several members emphasized the importance of discussing treatment decisions with doctors after diagnostic tests like right heart catheterizations, researching potential side effects and drug interactions, and consulting pharmacists for personalized medication guidance. A recurring theme was the trial-and-error nature of finding the right treatment, with swelling often being temporary during medication adjustments but sometimes severe enough to warrant a change in therapy.

A myPHteam Member

Your doctor can explain why they think this is a good idea. At this point I am on cardiac medications only and my bipap. I rarely argue with doctors about medication they are adding or subtracting. I do research them and side effects.

February 22, 2023
A myPHteam Member

Psliger, that is the same with me. I take cardiac medications and neuropathy and stomach medications, but nothing for PAH or PH. I also do research on the medicine and look at side effects and what medications will clash with other medications. Otherwise, I don't really worry about the medicine I'm given unless there is a big red flag. I'm sorry I don't know anything about Opsumit.

February 22, 2023
A myPHteam Member

My daughter is on it and has no issues. I am considering taking it now. Having a RHC tomorrow and will make decsion after that. God Bless

February 22, 2023
A myPHteam Member

I have had minimal swelling in my ankles. With every medicine change I go through this but usually only 2 weeks.

March 1, 2023
A myPHteam Member

Did you change your medication?

February 28, 2023

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