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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Question For People On O2

Question For People On O2

I noticed that I don't give myself a chance to rest when I'm walking, and it makes me very SOB. For some reason my mind thinks I need to get to where I'm going really fast. I'd like to know if anyone has suggestions of how I can remind myself to slow down.

A myPHteam Member said:

MaryAnnBederothBrydon: Life expectancy had been 5 to 5 1/2 years
until recently tly. There have been Grand advances that we are living much longer, now. The info that specialists have and the specialized meds. This years convention featured the fact that there are additional meds that are being worked on.https://www.myphteam.com/assets/set1/feed_comme... Patv.

posted 7 days ago
A myPHteam Member said:

I was told the life frame was five yrs

posted 8 days ago
A myPHteam Member said:

Another: It would take 2 years to diagnose PH previously. With the life "expectancy" of only 2 1/2 years during this time frame, that doesn't seem too good.

posted 13 days ago
A myPHteam Member said:

It's hard not to rush when you are able to multi-task like I am able to. What are we rushing for? As they say nobody gets out alive. Take care of yourself and each other (Jerry Springer).

edited, originally posted 17 days ago
A myPHteam Member said:

Deanna0223,
I know its late but i took a long nap after i spent 2 hours in dentist having major work done.
But i have been on oxygen for 2 years pretty much 24/7 except for when relaxing. I use a c-pap and oxygen together when sleeping as well. I have severe PAH and right side heart failure. When I start to feel SOB or tight in my chest thats a warning that I am not getting the oxygen i need and the more I push it i could black out or worse become inCoherent it has happened before. You need to be able to check your oxygen numbers. Buy a oximeter. It reads pulse and oxygen levels from your fingertips
Hope this helps you have a good night

posted 18 days ago
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