In general, and as much as you are willing to share, do you work? What type of work and hours, etc.
I am just beginning "my journey" with PH as my Pulmonologist says. I have not work due to COVID and I have been lucky to be taken care of.
However, I am super excited to start a job because I enjoy the work that I will be doing (data entry/Office Assistant). I am a complete nerd and love office supplies. I just think that there is a reason that this job was available and offered to me.
Congratulations You will be fine! My daughter has PH diag.7 years ago. and shew works a job she owns a company and spends long days there so yyou will be do well! God Bless you!
Hi Uraiwan. I think it is good that you want to work and I hope your new job is a good fit for you. I am 62 now and haven't worked since I was 50 because I have needed to care for my Mom. I am fortunate that I don't have to work but I think I could if I had to. I know I wouldn't be as healthy as I am if I didn't have to get up and go somewhere every day. Let us know how it goes please and don't forget to start working on our PH cookbook! 🤭
I'm also on the Remodulin pump along with two pills.
Wish you luck and hope you feel better.
I'm 42 and haven't been able to work since August of 2019, When I was diagnosed with IPAH I was so severe I had to go on the IV cadd pump for Remodulin. My specialist said I wouldn't be able to go back to the work I was used to as I would be a high risk employee. I was approved for long term disability June of 2020. Good luck too you. 💜🦓
I am retired from a job that I had for 20 years in the medical field. I loved my work but they were going to change computer programs and was planning on retiring that October but went early in June 2016. I was diagnosed April of 2018, I try not to let my PAH control my life either. Right now I am having issues wkth my lower back and in alot pain and waiting to get into the pain clinic to see if they can help me with the pain!
Sounds like you are doing well with your PAH.
If it wasn't for my husband of 44 years I don't know where I would be he has helped sooo much.
Waiting to hear from my doctor in Rochester, MN to go for my check up and hoping for a good report again.
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