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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Any Help, Advice, Suggestions, Support, Treatments, Etc., Would Be Greatly Appreciated.

Any Help, Advice, Suggestions, Support, Treatments, Etc., Would Be Greatly Appreciated.

A myPHteam Member said:

Malyssa---I want(ed) to respond & then I saw your next Q&A. That is my 1st
message to you always pray. I am very limited but, God has seen me through
and strengthened me. I've experienced so many symptoms: falling, tired,sob,
fatigue, weak, dizziness, nausea, vomiting, edema, breathlessness, and dry cough.
I hope that I have most of them. If you have any of these at any time, it is normal. I am adding you to my team. Not everybody gets put on meds and some people need to wait per their dr. The meds may help slow down the progression.
SOB is the 1st symptom, usually. Supportive o2 is one of the 1st things prescribed. It's helpful in the beginning to get an "oximeter" a device that measures your o2 on your finger. I suggest you write date & activity & o2 in a notebook. This will become your personal health records. **Note I mentioned "activity" your o2 will change at different times. At rest & walking you should get different readings.
This is a Great place to begin this journey. You will hear and read that there is no cure. But, yet, one of our members is here 30 years post dx. I've had PH for
at least 10 years prior to dx.
ON the top right of this page is 3 gray bars click there. Explore here & check out the articles & the Q&A, etc.We are ready to give you love, understanding, support and there is always someone that can reply to you.We all help each other. We are here in body and in Spirit. PatV.

posted 16 days ago
A myPHteam Member said:

Pat V You are a true Gem I'm not on here as much as I'd like to be but when I do, I always enjoy your beautiful supportive input and knowledge. Much love and light to you my friend

posted 4 days ago
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