I was tested for pulmonary hypertension and the mean pressure came to 26. Even though I fall into that category the doctor told me I don’t have pulmonary hypertension. What is your opinion?
No problem, check out the whole Pulmonary Hypertension Association website. There is a 63 page pdf manual you can read on your phone or computer that does a fantastic job of explaining PH:
Sophia, I knew nothing about PH before May 11th 🧐
So, maybe the cardiologist made the decision because your right side was good. PH is high pressure of the lungs. The lungs get the blood from the right side of the heart. Just a guess, I’m not a medical professional just a frequent flyer.
Don't give up! Advocate for yourself!
Thank you for all that. I have a pulmonologist and cardiologist and the cardiologist is the one that said no PH. I have left sided heart problems but my right side was fine. I will look into the clinics. Thanks again.
Hi Sophia, I was just diagnosed with PH on May 11th. No lung, breathing problems prior. I have been on blood pressure meds since age 21 (25 years), that was my only heart problem. Read my story if you fancy 😉
My Ultrasound/Sonogram was first to detect. I had imaging; an MRI, a Ventilation–Perfusion (VQ) Scan, and a CT Scan. The imaging was to rule out causes of PH like blood clots in heart/lungs. I had many problems show up on the 5 EKGs. I had a positive on the blood test Troponin 2 out of 3 times, this measures your blood for proteins that show in heart attacks. So, because of the ultrasound, EKGs, and lab results I had the catherization. Right Heart Catherization is the definitive test to actually measure the lung pressure. Right heart muscle works harder that’s why right side. The ultrasound is a good detector but it’s the catherization that is essential.
So, you had the definitive test what kind of doctor gave you the results, Cardio, Pulmonary, Internist (most of docs in ER), Primary? I had all of these doctors review results of all tests at the hospital and they agreed on PH. However, when I go to an actual Pulmonary Hypertension Clinic on Friday, it is their diagnostics that really matter because it’s their sub-specialty. Please remember PH is rare, under 1% of the population 🤓
Sophia, if you are suspicious (as you are your best advocate) of the catherization result ask for a referral to an actual PH clinic. If the clinic is accredited, even better. The Pulmonary Hypertension Association has been my bible the last few weeks. Here’s a map to show clinics:
Good luck on your journey, honestly I hope you do not have PH. 🥰
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