Two people in my schleroderma support group have had double lung transplants.

One person was depressed with the pain and medical care. A year later, he regrets it. The only positive that I heard is being able to take a deep breath.

Another person has blossomed. She never said a peep about recovery and only talked of the freedom without tubing. She moved to Arizona shortly after so now I mostly see her on facebook.

Well Im very familiar with the procedure and what to do after its done. Be glad to lay it all out for you if you like. Ive even watched a video of the whole thing.

I qualify for heart and lung transplant but due to my advanced liver failure from the PAH, I can't have any kind of surgery. Not even minor procedure due to risk of bleeding to death. My old cardiologist waited too long to send me to specialist.

I was a candidate for a bi-lateral transplant but they won't do it cause of other health issues but I have seen a video of the whole procedure.

I did alot of research on the matter and decided I just don't wanna go thru with it cause there's aloy involved and in my case they're not positive it'll even work or for how long.