I was diagnosed jun 2020 with PAH and put on oxygen 24/7 and and still on it alone with 4 medicines to prolong my life my specialist say at the beginning I was given 5 years as of now im stable I also have right side heart failure heart disease hole in my heart. I'm 38 years old
I have it but I don't use it 24/7 like I should. I don't get far away from it just in case. And lately, I've used it more often. It does ease me.
Thanks, me too. I was diagnosed in February this year. I'm glad to hear you went many years without O2. Best wishes.
James1153
Yrs, I have had PH for 14 years but have been on oxygen for 9 years only.
Hugs
Pat
Thanks. I hope that I can start just using at night. Have you had PH long?