Since being diagnosed with PH a little over a year ago I find myself constantly tired and almost always short of breath, even when doing simple things like tying my shoes, climbing stairs getting out of a chair short walks among other things. Sometimes I even feel short of breath when just sitting at my office? Once I started using my CPAP machine, it seemed to help, but now that I've been using it for almost a year, it doesn't seem to be making much of a… read more
I was shortness of breath doctor made me do 6 min walk, and put me on o2 24/7, cpap at night with o2. Then he had me go to pulmonary rehab. I build my strength in my lungs and heart. I feel better and the o2 and the rehab has helped me.
There are pulmonary exercises..I forget what it is called. Someone on here will know. Don't know if they are doing it during it during the pandemic. The people who have done it have loved it, tho.
dWarner, Welcome to this website. If you scroll through the site, you will find that all kinds of people have all kinds of problems. O2 seems to be one of the main treatments. I am on 5 liters of O2 at night, but I am noticing that I get a little short of breath doing things in the daytime also. I can't go up and down stairs. I fall and I can't walk very well due to bad knees, neuropathy, and arthritis. We all have different things that limit us in different ways. You should ask your doctor if your O2 levels are okay and find a way to exercise with bands or something not strenuous. I hope this helps a little and that you find your answers on this site. We are all here to help as best we can. Hugs and prayers.
Thank you for that information Vicdon.
Do you have o2 with your cpap? I can not tolerate it without it. Continuous air pressure I couldnt get the old air out because when asleep it dont exhale correctly. I am on a bipap. It let's up on blow pressure in rhythm to your sleep pattern, coordinated setting at sleep study.
My second study was bad, so got rx'd w/cpap. Long story, go to my story for more info. Hope this helps. S study calls the shots though. V