Since being diagnosed with PH a little over a year ago I find myself constantly tired and almost always short of breath, even when doing simple things like tying my shoes, climbing stairs getting out of a chair short walks among other things. Sometimes I even feel short of breath when just sitting at my office? Once I started using my CPAP machine, it seemed to help, but now that I've been using it for almost a year, it doesn't seem to be making much of a difference anymore? I'm 66 and was… read more
I was shortness of breath doctor made me do 6 min walk, and put me on o2 24/7, cpap at night with o2. Then he had me go to pulmonary rehab. I build my strength in my lungs and heart. I feel better and the o2 and the rehab has helped me.
i feel the same way, fatigued and don't want to do anything,
but i've found the best remedy is that you have to push yourself,
i'm getting worse as time goes by, i use to walk every day and then it got harder to walk and i went to the doctor and was diagnosed with PAH,
a few weeks after starting on PAH medicine i was feeling better and started walking again, i was up to 2 miles a day every day, but now i'm slipping back and some days i try to walk but have to stop, and some days i can only walk a quarter mile, but my point is do what your body will allow, some days i feel terrible but i still get out there and walk whatever i can,
with this disease i have good day bad day,
one night i walked 2 and a half miles without stopping and at a fast pace and i felt great, so i record the previous days events to try and find a pattern, enough rest, not retaining any fluids, ate lite that day, Etc...and i try to repeat it, but with no success, i haven't had a good day like that since, but i keep trying and won't give up,
God Bless and Good Luck
There are pulmonary exercises..I forget what it is called. Someone on here will know. Don't know if they are doing it during it during the pandemic. The people who have done it have loved it, tho.
dWarner, Welcome to this website. If you scroll through the site, you will find that all kinds of people have all kinds of problems. O2 seems to be one of the main treatments. I am on 5 liters of O2 at night, but I am noticing that I get a little short of breath doing things in the daytime also. I can't go up and down stairs. I fall and I can't walk very well due to bad knees, neuropathy, and arthritis. We all have different things that limit us in different ways. You should ask your doctor if your O2 levels are okay and find a way to exercise with bands or something not strenuous. I hope this helps a little and that you find your answers on this site. We are all here to help as best we can. Hugs and prayers.
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