Judy, thanks for the feedback.I have PT coming three times a week. I do get out of bed and try and get some exercise. I'm working on it!

For what its worth Medicare won’t pay for oxygen unless it is 88% or less.

Yes I have a pulmonary Dr too! I am seeing the cardiologist soon. My pulmonary dr is a cardio/pulmonary critical care dr. He takes care of PH patients on the pulmonary side. The cardiologist I will be seeing is head of the CHF(congestive Heart Failure) group so he will decide which medicines for the fluid I keep having. Lasix is just not doing the job. Watch your oxygen levels close. When I don’t feel good mine drop easy. Keep me posted! Take care. ❤️

Thank you! I knew mine went lower on my readings at night. It is usually at 93 during day though. Do you have a pulmonary Dr?

Diane, pick your PT’s brain for ways to get you moving. JudyHand is SO correct. We, with this disease, along with any other diseases, have GOT to remain as active as possible. Ask your PT about Dr. Noah Greenspan videos called Pulmonary Wellness Bootcamp. He has classes and videos (for free!). Do soup can weights, try chair yoga and learn pursed lip breathing and diaphragmatic breathing. PHight for yourself!