What are some of the moments you find your PH bothers you the most.

What are some of the moments you find your PH bothers you the most.

Taking a shower cause me to get SOB often.

A myPHteam Member said:

Me too, drains me awfully. I was lucky and already had a shower stool to sit on, but I have almost passed out several times trying to dry off...take your time, rest between washing and rinsing and rest again before getting out...sometimes I dry off while I sit and take slow deep breaths...Hope this helps.

posted over 1 year ago
A myPHteam Member said:

Oh my I know the feeling. Showering is the worst and tAkes forever. I feel so wiped out when done. I have a stool but it's still a process . At least I dont get very dirty from sitting all day. Trying to keep that independence. I dont want to have to have someone to groom me. One step at a time even if it takes all day. PAH forces you to pace yourself in everything you do.

posted 4 months ago
A myPHteam Member said:

Showers are terrible for me also. For some reason my tubing gets water all over the floor. Don't know if I have it in the shower all the way or not. Plus, I have semi-long hair and I have to sit on my bath stool to wash it and to shave! It is a real fiasco. I am "happy" to read that others have the same problems with showers and I don't think there is an easy solution. I don't dare take a bath (hate baths) because I wouldn't be able to get up (ha ha)!! Other moments that bother me are when my family (niece and nephews) visit and I cannot do much with them. It really upsets me. The illness has robbed so much of me but I try everyday to enjoy something in life!!! Everyone hang in there..PH will not win!!! take care

posted 10 months ago
A myPHteam Member said:

@A myPHteam Member I had to completely change the type of bras I wear because underwire cuts my breath off. I'm strictly comfort lol. It sucks because i used to wear spanx/girdles to smooth out for formal occasions, but not now... oh well lol.

edited, originally posted over 1 year ago
A myPHteam Member said:

I also take offense to ppl not believing me and i had a person tell me yesterday no wonder ur insurance won't pay 2liters is nothing and you shouldn't be on it and of course the shower God bless you all and take care breath easy

posted 10 months ago
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