Pulmonary Hypertension

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2 medium

Has anyone had Stem Cell Treatment for COPD?

Has anyone had Stem Cell Treatment for COPD?

I am planning to have stem cell therapy by the end of this year and am hoping I have chosen the best place to go for my procedure. Treatment in the United States does not allow for manipulation of the cells so you can only get allografts here. Meaning they can't separate the cells and make them stronger or make them multiply. I have done a lot of research and plan to have my procedure done in Jamaica. They will get the cells from a donated Umbilical Cord where the… read more

9 mini
A myPHteam Member said:

Do anyone know the name of this place or one in jamaica as would like to look into this I have terrible breathing I sure like to see if rthey could fix… read more

posted about 1 month ago
8 medium

Heart & Lung Probs-Does Anyone Have Nightmares?

Heart & Lung Probs-Does Anyone Have Nightmares?

I'll be 60 this year. Had first heart attack at 34 and have had six more since. Several stents and one triple bypass. This past winter ended up with pnuemonia and hospitalization three times over three months. Doc shows I have only 50% usage of my left lung (and has not given me a reason why or what caused it--it's been over six months now). Each heart attack and each pulmonary trip to the hospital have scared me so bad I literally thought I was going to die--each… read more

7 mini
A myPHteam Member said:

Good luck to you. I hope you get the proper answer needed. I have Copd and emphysema. The .Dr put me on oxygen, and trelgy and I don't really sleep… read more

posted 2 days ago
8 medium

Is anyone using [[treatment:Sildenafil:59b7098bff29502bb8a490a5]] ? Trelegy?

Is anyone using [[treatment:Sildenafil:59b7098bff29502bb8a490a5]] ? Trelegy?

I was on Symbicort and Spiriva for years. I tried to get on a clinical trial for Trelegy 2 years ago but could not blow 25% lung function. Without meds I blow 13%. My pulmanary Dr. was part of the team and when it came on market I started using it. I LOVE IT! ! time in morning and I breath easy all day long. I still run low on o2 during strenuous activity, but I don't feel like a bear is squeezing me. In march I started on [[treatment:read more

9 mini
A myPHteam Member said:

When I went up to 75ml I went a bit funny,like dizzy very light headed & double vision,I told the doctors & have put me down to 50ml 3 times… read more

posted 2 months ago
3 medium

Have a aortic steni

Have a aortic steni

9 mini
A myPHteam Member said:

YES ALWAYS and WHAT did he say?

posted 3 days ago
1 medium

Does anyone else with ipah have chronic nausea?

Does anyone else with ipah have chronic nausea?

Nausea gets worse with activity and can feel pressure building in my body nothing helps but to throw up sometimes

9 mini
A myPHteam Member said:

So Glad you went and ask!

posted 3 days ago
7 medium

How do I find the middle ground so I don't get so fatigued?

How do I find the middle ground so I don't get so fatigued?

I'm learning that even the slightest stress causes me to get exhausted. Life is full of stress without even trying. I struggle to find that middle ground in handling the stress that normal life hands me and still be able to function. I am able to keep basic cleaning done and grocery shopping with my husband's help. But some 6days that gets to be too much when unexpected stress pops up.

4 mini
A myPHteam Member said:

I'm just seeing this post. Earlier today I was lying on the couch and said "I don't know why I'm so exhausted" my mom replied, "Kelly, it's Friday.… read more

posted 25 days ago
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