Rheumatoid Arthritis

PAH

My son has PAH and has a very aggressive behavior. Is this normal?

I Have Extreme Dizzyness Upon Walking And Standing

Does anyone else have extreme dizzyness on standing and walking. Mine disappears if I lay done flat. I have stage 4 emphasema a blood clotting problem which is hereditary I take eliquis for that and trelegy for my emphasema.

Treatment

What are some of the medications we can take?

Can You Keep In Touch W Me For The Support?

Just doing my stair steps takes my breathe away but then some days i can do alot more. Is this normal for ph? And what happens to cause this?

Is There Anyone On Here That Has Genetic PAH?

I was diagnosed with PAH that is actually genetic. I have a mutated gene.

Fatigue Shortness Of Breath And Weight Gain With PH

Since being diagnosed with PH a little over a year ago I find myself constantly tired and almost always short of breath, even when doing simple things like tying my shoes, climbing stairs getting out of a chair short walks among other things. Sometimes I even feel short of breath when just sitting at my office? Once I started using my CPAP machine, it seemed to help, but now that I've been using it for almost a year, it doesn't seem to be making much of a… read more

Does Anyone Else Experience Severe Pain Upon Standing?

Does anyone else experience severe, excruciating pain every single time they stand up? It is followed by severe shortness of breath. Nitroglycerine does not help it. The pain is in my upper diaphragm, just slightly below the breast line, which I've been told is still considered chest pain?

Any Suggestions About How To Treat Muscle And Bone Cramps

PAH Clinical Trials

Has anyone been on or is participating in a clinical trial for PAH? If so, did they work well for you?