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When someone has a right heart cath, and told what there pulmonary pressure is, I was wondering how this number correlates to being on oxygen.
I would appreciate some examples of pressure and when they had to go on oxygen.
I just had a right heart catheterization yesterday and my pulmonary artery pressure was 24. It lowered tremendously from my first heart catheterization back in October 2022 when I was first diagnosed… read more
@A myPHteam Member, is so right. I take Orenetram and it messes with me all the time. I have to take it though so, I take Benadryl. with it. They put me on a different medication at first and I… read more
I have cough too and mucus but I can still rejoice
Any suggestions to help with swallowing air, how much assistance did you get when you started, and any machines that seem to work very well? I need to use it, but it's been rough with limited assistance (Dr. office booked solid and rental company is next to useless).
I use a bipap ….I have to use a full mask but a small one. The bridge of my nose is narrow and if its not small air leaks out.
Indiana winters are especially hard I can’t catch my breath in the cold
I find that I have a little bout of nausea after eating. I'm not on heavy duty meds so it can't be that. Is it related to PAH?
I don’t have nausea, but I have been getting indigestion quite often. I wake up at night and have to take tums.
I have not tried a beet root supplement or juice, but I have been enjoying a cup of brewing cacao every day. I order brewing cacao on Amazon and brew it in a French press. It is quite tasty with a bit… read more
Would anyone know of a medical supply company that you can order online .
I have Raynauds where my fingers turn white, and my circulation isnt great. To get an accurate Pulsox reading, I need to read it from my forehead. I know they are available, and some are expensive. Alot of places dont have them. I was wondering if anyone has the same issue as I do.
Its important that I do check my oxygen level.
Thanks,
Joan
Mine all fit on my finger to measure.
Is anyone aware if Covid has affected your PH and made it worse?
I had Covid last July, and seemed to be worse after it.
I just tested positive last night, but virtually have no symptoms. The pharmacist said I probably have a mild case, and just rest, and take tylenol.
Joan
Hi Sandy, I started therapy in Dec. It helps but I come home exhausted each day also.
Oh yes !!!! Welcome to our world . Right Teresa
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