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Pulmonary Hypertension

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I Had An Overnight Sleep Study Done On Oxygen.

I Had An Overnight Sleep Study Done On Oxygen.

The doctor's office called to say I was desaturating to 78% for 9.5 minutes. I have to go in for another sleep study to see why I desaturate while on oxygen. Is there a C-PAP with an alarm system to wake you if your oxygen level goes too low? How dangerous is it for this level? Does anyone have any answers?

A myPHteam Member said:

Yes, they did. I went last night for my sleep study. It seems that when I enter REM sleep my mouth drops and immediately my oxygen drops to the 70's. I… read more

posted 3 months ago

Runny Nose While Using Oxygen

Runny Nose While Using Oxygen

I have had the WORST runny nose for the past couple weeks while wearing oxygen. It’s not a cold, I don’t have allergies, just this ridiculously runny nose, and the more active I am, the more it runs!! Aarghh... Any clues?

A myPHteam Member said:

Towanda Thanks my EN&T suggested it also, didn't say there was a gel.

posted 3 months ago

I Am On Liter Flow 8 And I Still Get Breathless Moving Around Any Suggestions To Make It Better?

I Am On Liter Flow 8 And I Still Get Breathless Moving Around Any Suggestions To Make It Better?

I go into panic mode if I have to take a shower a fear I have no idea where it comes from, or to leave the house which I only do for Doctor appointments I just fear I won`t be able to catch my breath. The oxygen bottles only last 45 minutes the same with my Imogen liter 5 when its on it is the highest level 5 also 45 minutes once its charged can be charged or stay charged if left plugged in. I am feeling very nervous… read more

A myPHteam Member said:

Thank you! Yes my doctor prescribed a calming medication and the side effects were worse than the anxiety.Venlafaxine is the med and google it read the… read more

posted 3 months ago

What Percentage Of People Are Cured, Vs. Misdiagnosis?

What Percentage Of People Are Cured, Vs. Misdiagnosis?

I was given 2 to 4 months to live, sent home on oxygen. I refused meds. That was 6 years ago. I pushed myself until I cried. Within one year, I was jogging. Today I mountain climb. Never give up.

A myPHteam Member said:

KevinKohari. Just added you to my team. We are all here to support you as we all know how you feel. You have a great attitude, keep it, you may need it.… read more

posted 3 months ago

Weird Feeling In Arms And Legs

Weird Feeling In Arms And Legs

Does anyone get a weird feeling in their arms and legs? I'm not quite sure how to describe it. It's like the blood feels cold. Not really a numbness. Just a weird feeling. I get that even when I'm laying down doing nothing. My doctor did not know what that was. I have my heart catheter on Friday. He said he would know more then, and will decide if I'm eligible for a thromboendarterectomy. My lung pressure was estimated 120-130.

A myPHteam Member said:

Had one a few years ago Hangin there Nt ad bad as you think Gd be with you

posted 3 months ago

Can Prolonged Shortness Of Breath Cause Depression?

Can Prolonged Shortness Of Breath Cause Depression?

I’ve been short of breath for years now as I can remember having a low pulse ox when in the hospital with surgeries 4 years ago. The nurses would tell me I must have asthma. And I have struggled with depression too. Now I’m on 4 liters of oxygen and feeling so much better and wonder if the shortness of breath might have been the cause.

A myPHteam Member said:

That sounds like fun I do the same so I can get my walk of the day LilCasperbest if luck on your trips keep texting I am up to 8 on my concentrator but… read more

posted 3 months ago

Hullucinations?

Hullucinations?

WIth COPD do you Hallucinate?

A myPHteam Member said:

I have COPD stage 3 i can't walk more than 20 feet and then I out of breath i take my oxgen with me any suggestions that can help me? Thanks

posted 6 days ago
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