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Pulmonary Hypertension

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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Does Anyone Have A Change In Their Voice Or Feel Like They Are Losing Their Voice All The Time?

Does Anyone Have A Change In Their Voice Or Feel Like They Are Losing Their Voice All The Time?

About a month ago I thought I was losing my voice but it never completely goes away, and it just stays at this high pitched raspy voice. I also am running out of air when I’m trying to say something to someone.

A myPHteam Member said:

What ever works for you. Im sure everyone here has their own way of dealin with their illnesses.

posted 13 days ago

I'm Considering Getting A Wheelchair. Should I?

I'm Considering Getting A Wheelchair. Should I?

I have pretty good insurance, thank goodness, so obtaining one won't be a hurdle. But I went out for a walk today and walking, just WALKING at a slow pace was enough to send me to bed for the rest of the day and into the night. All I did was walk around our block and come back just to stretch my legs and get some air. Now I'm having chest pain and breathing issues. I can barely talk. I'm worried about being judged for being young and needing a wheelchair (I'm 28 and I already have a rollator and… read more

A myPHteam Member said:

I hope the chair makes your life easier. Keep us posted. 🤗🐦

posted 12 days ago

Grounding

Grounding

My dr highly recommends grounding for all medical issues. My Dr. Uses the grounding and promises it works. My son started a few months ago and it helped h but he just bought grounding sheets off of Amazon
..I'm not going to try to explain it just look it.up. let us know if anyone is using this

A myPHteam Member said:

No the pad or sheets are not electric. The sheets come with a plug that plugs in the ground plug,does not go intp the outlet itself.

posted 25 days ago

Does Anyone Have A Problem With Walking?

Does Anyone Have A Problem With Walking?

I can not go shopping because I end up in so much pain I want to scream.

A myPHteam Member said:

Thank you for sharing. Those carts help so many to be able to shop. I wish they had more 9t them.

posted 18 days ago

Yes

Yes

A myPHteam Member said:

I'm walking and moving a little more. I have canned oxygen on me all the time and portable oxygen to carry, but its a little heavy right now. Gotta work up strength!

posted 23 days ago

Are Sleep Disturbances Common With PH?

Are Sleep Disturbances Common With PH?

Right now I am taking a hefty dose of Prednisone, so that could be a factor, but even before the Prednisone every fifth night or so I would stay up all night. I worked nights for a long time, so it really isn’t unpleasant for me.I just need to know if staying awake like that is ok, and not not detrimental to the few brain cells I have left

A myPHteam Member said:

I have sleep issues, too! CPAP on my face and is not helping the problem. Who can sleep with that mask on!! I have been on Prednisone for over a year and have gained an insane amount of weight. Going… read more

posted 13 days ago

Possibility

Possibility

Just got my chest X-ray back it says it's normal but still having difficulty with breathing and wheezing I do have severe COPD I check my pulse ox and it is saying it's in the low-90s most of the time but still struggling to breathe what could be causing that and I still have some chest pains at times but chest fills heavy all the time and my Fitbit watch tells me I have abnormal heart rate

A myPHteam Member said:

COPD has scarring in the airway. Scarring makes the airway tight over time. Making it hard for the lungs to expand. If you have air trapping, the lungs can’t push the air back out. *like have filled… read more

posted 23 days ago

What Does An Abnormal EKG Indicate?

What Does An Abnormal EKG Indicate?

A myPHteam Member said:

An abnormal EKG means something is not right with your heart
Hugs
PatSmith

posted about 1 month ago

Does Anyone Have Informal

Does Anyone Have Informal

A myPHteam Member said:

Do you have pulmonary hypertension? Treatment depends on the cause of your PH. How are you doing? It's a hard diagnosis. Need more info.

posted about 1 month ago
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