Pulmonary Hypertension

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My 4year old grandson has had ph since birth will he out grow it?

My 4year old grandson has had ph since birth will he out grow it?

He's had to be in the NICU first 2 weeks of his life and hospitalization several times life threatening they said next one could kill him

A myPHteam Member said:

Praying for your grandson

posted 7 days ago

Does ph slow me down and make me impatience since I am caregiver to my husband who has a lil dementia but lots of health issues

Does ph slow me down and make me impatience since I am caregiver to my husband who has a lil dementia but lots of health issues

now that I am 75 and being Irsih and lil Indian find it difficult to slow down and still take care of my husband and myself as of lately we have had a lot of issues with owning our house but find it small and manageible, however my husband has had a rough year blood clots and failing health find myself losing my patience but wonder if the PH is also a part of my problem

A myPHteam Member said:

posted about 2 months ago

I was diagnosed with PH in November 2018 my doctor said it is not bad enough to treat

I was diagnosed with PH in November 2018 my doctor said it is not bad enough to treat

I was diagnosed with pulmonary hypertension November 2018 in the ER. This was a new diagnosis as stated on my ER papers. My pulmonary doctor said he know about it. When I last saw him in April he said he was going to do another CT in a year and go from there that is to check some nodules that I have. He said oh your PH isn't that enough to treat I am on oxygen 24/7 2L at rest 3L when active. Everything I read says the earlier… read more

A myPHteam Member said:

Lisa, I struggle with how to eat right. I'm mostly a vegetarian, but at my age my appetite is a problem. Just not hungry much and then don't feel like… read more

posted 16 days ago

Oxygen

Oxygen

What are the oxygen counts that one should be aware of. . When is it to low? At what numbers?

A myPHteam Member said:

W/O Oxygen mine is as low as 73-86.. with its about 92 on 4 percent, when it gets really low my chest starts to hurt..I have CHF, PHT, pacemaker, copd,… read more

posted 14 days ago

Back pain what working for others beside anto biotics

Back pain what working for others beside anto biotics

anyone know what helps back pain?I been using anti biotics that I purchased in mexico lasy winter but seems a few days after the pain is back and cannot sleep even moving walking makes it worst.My lung Dr really do nothing for me same as family dr.i hate being low on 02 should wear the tubing but i onky do at night.dies me out too but just a hassle to wear really but anyone know any better ideas i love to hear them.

A myPHteam Member said:

If your not getting the care you feel you need, find another doc.

posted about 1 month ago

Raising arms above your head

Raising arms above your head

I have read here that you shouldn.t raise your arms above your head, but no one said how far. Can I get dishes from the cupboard.?I am relatively new to PH and CHF, still learning all the ins and outs

A myPHteam Member said:

MarionChappell. I hope and pray the pain gets better

posted about 2 months ago

My Pulmomologist said I have PH and has not given me anything to help with symptoms.

My Pulmomologist said I have PH and has not given me anything to help with symptoms.

I feel very fatigued, Dizzy and short of breath most/All days. Especially after trying to do something for an hour or so the day before. I have been like this for 2.5-3 years. My pulmonologist is not treating me for it just making me do more tests with cardiologist. I live in Oklahoma and the Humidity is making it worse. I can't work.
It starts when I wake up (I am on CPAP) and gets worse when I shower. If I bend over to tie my… read more

A myPHteam Member said:

What's the difference between this and lupus

posted 23 days ago

SOB

SOB

My kidney doctor said being overweight could cause this Pulmonary Hypertension

A myPHteam Member said:

Bahhahahaha

posted about 2 months ago

Thoughts?

Thoughts?

I have a very hard time with meds to the point of my life of quality is more important than quantity of time. Medication is not going good.
I strongly believe in the power of God and believe that He is what has sustained me this far.
I’m open to more natural things.
Everyone has an opinion, this is just mine.
Just sharing my thoughts and not bashing anyone that thinks different.

A myPHteam Member said:

I have a hard time taking and swallowing my meds

posted 17 days ago
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