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Pulmonary Hypertension

Questions + Answers

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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Does Any One Have These Symptoms

Does Any One Have These Symptoms

I get heart burn super bad and my hips and lower back are so painful I can't walk.

posted 13 days ago
A myPHteam Member said:

Thank you you helped a ton I also am on opsumit 1x day and sildenafil 3x a day With lasik. I also take Klonopin but for a different reason I found out I have scoliosis so I am pretty sure that's the… read more

posted 7 days ago

Has Anyone Received A Diagnosis Of Nocturnal As A Side Effect From Uptravi?

Has Anyone Received A Diagnosis Of Nocturnal As A Side Effect From Uptravi?

Occasionally I have nights where I have an urgency to pass urine at least 5 times within a 2 hour window. It only happens when I go to bed and my body relax for sleep. I consulted my doctor GP and she said to avoid dairy products in the late evening as dairy can irritate the bladder. I tried that but dairy wasn't the problem. Now she is saying possible side effects from my meds. I take Uptravi, Sildenfal, losartan, anolophime and rosuvastatin. Just wondering if anyone else expethis problem… read more

posted 16 days ago
A myPHteam Member said:

I take fluid pills so I only get up once a night

posted 16 days ago

Diagnosed With PH In May. Local Cardiologist And Pulmonologist Confirmed. New Pulmonologist Thinks Not PH?

Diagnosed With PH In May. Local Cardiologist And Pulmonologist Confirmed. New Pulmonologist Thinks Not PH?

Has anyone else had this happen. Now waiting for an appt at Vanderbilt.

posted 19 days ago
A myPHteam Member said:

I have a preasure of 90+. The lung doctor says it’s heart related &!the PH specialist says it may be a medicine I’m on. Waiting for results of blood work, & will probly be having a R & L heart… read more

posted 19 days ago

Does Anyone Have A Medical Alert Bracelet? If So What Did You Have Engraved On It?

Does Anyone Have A Medical Alert Bracelet? If So What Did You Have Engraved On It?

I’ve been thinking about getting a medical alert bracelet. The site I was looking at asks what I want to customize it to say. I’m not exactly sure, so I thought I would see what others were doing.

posted 21 days ago
A myPHteam Member said:

I suggest every one here gets one there are so many hospitals and Dr that can not deal with this illness you want them to know how to take care of you

posted 13 days ago

Does Low Humidity And Colder Temperatures Affect Your PH?

Does Low Humidity And Colder Temperatures Affect Your PH?

posted 22 days ago
A myPHteam Member said:

Keep your appointments with your pulmonologist
If you don't understand what your doctor is telling you please ask the doctor to clarify
Try to be as active as you can tolerate

posted 9 days ago

Are There Any Good Doctor In Virginia Beach Area Who Know Pah And Treatment. I Am Thinking Of Moving There.

Are There Any Good Doctor In Virginia Beach Area Who Know Pah And Treatment. I Am Thinking Of Moving There.

I want a doctor comfortable with treating this condition.

posted 28 days ago
A myPHteam Member said:

I have an Apple smart watch that does O2 and pulse. I prefer my wellue ring. With the watch I have to push the button to make the watch take a reading. My husband says you can set up a sleep mode… read more

posted 26 days ago

Chest Pain

Chest Pain

I was just in the kitchen, and I felt a pain in my chest. I know with pulmonary hypertension chest pain is possible. But it was like one of the very few times I felt it. Has anyone else experienced these?

posted 29 days ago
A myPHteam Member said:

Yes I also have severe PAH and right sided heart failure. I get those pains everyday when the pain gets really bad to point of making me sick I go to the ER then usually stuck in the hospital for up… read more

posted 11 days ago
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