Does anyone get a headache with thier dizziness? I only get or feel dizzy when changing positions. Although I was sitting talking and laughing and then after about an hour I felt dizzy. I'm sitting down and feel.dizzy. I was told I have postional vertigo. I have had vertigo in the past. About 2005. It lasted for about 1 month or so. I never get dizzy with exercise. Or walking. Only changing positions. It feels.like room is spinning. Like its moving and I'm not..
I read a post yesterday suggesting that if you take a cooler shower that it helps you breathe easier. I want to give a huge hug to that person who wrote that. I tried that this morning, and it made such a huge difference. I didn't have to sit down afterward to catch my breath. I still need to use oxygen in the shower, but knowing that I can take a full shower and not huff and puff halfway through makes a huge difference. So thank you so much for whoever posted that! This group is amazing!
I can't seem to get this fluid intake down. I will gain / or lose 5-8 overnight. I was drinking a gallon a day before my swelling and dx. Now I'm trying to keep under~64 ounces.
I've had this super fun disease for about 5 years. I've been on oxygen the whole time. Has anyone else had difficulties with being seen with their oxygen in public? I know I shouldn't care what others think, and that I need oxygen to live, but I just hate the unwelcomed stares.
Has anyone in here had covid? If so did you have to be admitted to the hospital or did you deal with it at home? If you had company covid what other conditions do you have if any that might have played a part with your covid recovery?
I’m trying to determine if I should get the vaccine or not. I have the PH plus Thrombocytopenia, and a very low immune system. I’m concerned on outcomes if I were to get Covid without being vaccinated.
I have also heard some people should not get the vaccine… read more
What should your heart rate be?
Mine seems to be low
Except tonight was higher
And had a harder time breathing
Thanks for all your help and prayers 🙏
What can help with dizziness? I have felt it a little more lately.
I was now prescribed spriva. I start it tonight. I'm a little nervous about another nee inhaler. Anyone here use it?? I know everyone is different different reactions but what did you think?? Did it help??
We never share your personal information with anyone.