Connect with others who understand.

sign up log in
Resources
About myPHteam
Powered By

Questions & Answers

Get practical advice and insights from people who understand

Don't see your question? ask question
Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
View:
I Don’t Know If I’m Going Crazy. Has Anyone Experienced Hearing Their Heartbeat In Their Ear? Is This Part Of PH?
A myPHteam Member asked a question 💭
posted 4 days ago
Be the first to like/hug
A myPHteam Member

Thanks ChristineS for the link to read more. It helped me a lot. I also have hyperthyroidism which could also play a part in what I’m experiencing. My grandmother use to say, “If it’s not one thing… read more

posted 4 days ago
My Oxygen Is Not Travelling Around My Body So I'm Always Short Of Breath. Anyone Else Have This And If So What Did They Do?
A myPHteam Member asked a question 💭

PAH just over a year no other health conditions. Heart through medication is doing well the numbers are good but my breathing is worse my doctors can't figure it out. 2 mins into my walk test my oxygen drops to 77% but they don't no why. Anyone else experience this?

posted 5 days ago
View reactions
A myPHteam Member

I try to stick to 1.5litres a day

posted 4 days ago
My Spouse Sleeping Patterns Effect Eating Times
A myPHteam Member asked a question 💭

My spouse is sleeping more n more. Its very hard to plan a dinner or anything around this. Should I work around this sleeping pattern of stick to schedule? Also my spouse is in an advancd condition of PH is this why there is more sleeping needed?

posted 5 days ago
View reactions
A myPHteam Member

As PH advances and your spouse struggles more, fatigue worsens, and more sleep is common. It takes a lot of unconscious energy to breath. This is especially true when breathing is labored to the point… read more

posted 4 days ago
How Does Your Furry Friend Make Life With PH Better?
A myPHteam Member asked a question 💭
posted 5 days ago
View reactions
A myPHteam Member

It is truly amazing how pets know or sense something is wrong and just stick by you. Yes, I have PH and it appears my dogs know when I have bad days. I had cervical spine surgery and because I had to… read more

posted 9 hours ago
I'm On Oxygen Sildenifil Opsumit And Trilogy. Wat Category Do I Fall In?.
A myPHteam Member asked a question 💭
posted 6 days ago
View reactions
A myPHteam Member

I agree, it sounds like you fall into the Group 1 category or PAH. What is the cause of your PH?

posted 5 days ago
How Do I Find A Dr Or Clinic That Specializes In PAH?
A myPHteam Member asked a question 💭

I found that there are a lot of options for clinics for PH, but would like to find someone that has really studied PAH. I am will to go anywhere in the US.

posted 6 days ago
Be the first to like/hug
A myPHteam Member

I ended up making an appointment at the Mayo Clinic in Rochester MN. They are getting me in in 5 Weeks.

posted 1 day ago
Anybody Use Sleeping Medications?
A myPHteam Member asked a question 💭
posted 7 days ago
Be the first to like/hug
A myPHteam Member

Dayvigo

posted 5 days ago
What’s The Highest Pressure You’ve Heard Of. I’m At 170, Not On Oxyg. Can’t Take Amb Or Letaris.
A myPHteam Member asked a question 💭

What’s the highest pressure you’ve heard of. I’m at 170, all the pills they tried made me anemic and I had to go off blood thinners. Said there’s nothing else they can do.

posted May 27
View reactions
A myPHteam Member

It’s the pressure in your lungs also ma show on the echo as 50mm

posted 5 days ago
Has Anyone Experienced Hemiparalysis Of The Diaphragm?
A myPHteam Member asked a question 💭

EP procedure found paralysis of diaphragm on the right side. Diaphragm did not respond to direct stimulation of phrenic nerve.

posted May 27
View reactions
A myPHteam Member

I was unaware of paralysis, but have the most ridiculous time trying to do diaphragmatic breathing. I had a sniff test done at one time and was told that it was normal. This was an unexpected finding… read more

posted 6 days ago
Any Other Treatments(new) For Pulmonary Hypertension?
A myPHteam Member asked a question 💭

My mom has copd and pulmonary hypertension. I am her care giver..I am pleading for anyone who knows are has found a sucesssful treatment, that has given you or a love one relieve to please share it with me...Please. Thank you.

posted May 27
View reactions
Continue with Facebook
Continue with Google
Your privacy is our priority. By continuing, you accept our Terms of Use and Privacy Policy.
Already a Member? Log in