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Pulmonary Hypertension

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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Dizziness

Dizziness

Does anyone get a headache with thier dizziness? I only get or feel dizzy when changing positions. Although I was sitting talking and laughing and then after about an hour I felt dizzy. I'm sitting down and feel.dizzy. I was told I have postional vertigo. I have had vertigo in the past. About 2005. It lasted for about 1 month or so. I never get dizzy with exercise. Or walking. Only changing positions. It feels.like room is spinning. Like its moving and I'm not..

A myPHteam Member said:

Definitely speak to your doctor it seems as if it’s vertigo i get slight pressure headaches but they have come down to control with time since the doctor adjusted the strength of the medication since… read more

posted 21 days ago

Showering

Showering

I read a post yesterday suggesting that if you take a cooler shower that it helps you breathe easier. I want to give a huge hug to that person who wrote that. I tried that this morning, and it made such a huge difference. I didn't have to sit down afterward to catch my breath. I still need to use oxygen in the shower, but knowing that I can take a full shower and not huff and puff halfway through makes a huge difference. So thank you so much for whoever posted that! This group is amazing!

A myPHteam Member said:

That follows perfectly with the advice, to stay out of extreme heat and humidity

posted 13 days ago

Any Body Take Water Pills?

Any Body Take Water Pills?

I can't seem to get this fluid intake down. I will gain / or lose 5-8 overnight. I was drinking a gallon a day before my swelling and dx. Now I'm trying to keep under~64 ounces.

A myPHteam Member said:

My PCP told me to drink lots more water than 48 oz .... when my pulmonologist heard that he was upset ... "we are trying to get the water out of you, not create more" Some doctors just don't know what… read more

posted 11 days ago

Oxygen

Oxygen

I've had this super fun disease for about 5 years. I've been on oxygen the whole time. Has anyone else had difficulties with being seen with their oxygen in public? I know I shouldn't care what others think, and that I need oxygen to live, but I just hate the unwelcomed stares.

A myPHteam Member said:

You begin working on you, you have to control your self-consciousness. Five minutes after these people see you they have forgotten while it's still eating you alive. As a retired psych nurse let me… read more

edited, originally posted 19 days ago

“Teams”?

“Teams”?

Please direct me to the place in this web community which describes “teams.” Thanks.

A myPHteam Member said:

Thank you.

posted 26 days ago

To Vaccinate Or Not

To Vaccinate Or Not

Has anyone in here had covid? If so did you have to be admitted to the hospital or did you deal with it at home? If you had company covid what other conditions do you have if any that might have played a part with your covid recovery?

I’m trying to determine if I should get the vaccine or not. I have the PH plus Thrombocytopenia, and a very low immune system. I’m concerned on outcomes if I were to get Covid without being vaccinated.

I have also heard some people should not get the vaccine… read more

A myPHteam Member said:

BosmomNancy. Yes sweet lady, I have a cardiologist and a pulmonologist............ I remember you well, we have visited before, I am still praying for you🙏❤️🙏❤️🙏❤️🙏❤️ I wish you feel… read more

posted 22 days ago

Heart Rate

Heart Rate

What should your heart rate be?
Mine seems to be low
Except tonight was higher
And had a harder time breathing
Thanks for all your help and prayers 🙏

A myPHteam Member said:

DebPeterson good morning. Thanks for the hug. Most appreciated. Hope you have a good day. Prayers and hugs.

posted 26 days ago

Dizziness

Dizziness

What can help with dizziness? I have felt it a little more lately.

A myPHteam Member said:

Tb for dizziness always sit up first close your eyes and rotate your head slowly very slowly side to side stretching your neck muscle and breathing slowly as you massage your temples on your head. Try… read more

posted 27 days ago

Inhaler

Inhaler

I was now prescribed spriva. I start it tonight. I'm a little nervous about another nee inhaler. Anyone here use it?? I know everyone is different different reactions but what did you think?? Did it help??

A myPHteam Member said:

Tb I have never taken Spiriva but many of my patients are on it. I have not heard any real complaints. Try it and be consistent. Compliance to your medication is key. Then if you not sure talk to your… read more

posted 29 days ago
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