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Pulmonary Hypertension

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Has Anyone Had She Has Come Up After Being Diagnosed With Pulmonary Hypertension

Has Anyone Had She Has Come Up After Being Diagnosed With Pulmonary Hypertension

how does someone like me manage having to have a cardiologist, a pulmonologist, a gynecologist, now I need a thyroid doctor and I just am getting very irritated with all these doctor appointments I know it's important but how do I manage that and have a life or is this my new life

A myPHteam Member said:

I’m dealing with the same thing. If it weren’t for Drs appointments I wouldn’t have any social life. I’m thinking this is part of getting older and the… read more

posted about 1 month ago

My Cardio Said My PH Is Bad, But The Pulmonologist Said Meds Don't Help And Send Me Back To Cardio. Is This Common?

My Cardio Said My PH Is Bad, But The Pulmonologist Said Meds Don't Help And Send Me Back To Cardio. Is This Common?

My PH was found on echo. I have h Ehrles-Danlos, lymphedema, sleep apnea, hypothyroidism, and some other EDS co-morbidities. I am confused, though. I had a cath, ct, I have an implantable loop cardiac monitor to catch any issues there, some dysautonomia issues, but other than the echo finding PH everything else was fine.

My cardio sent me to the pulmonologist to see if he would give meds since I can't… read more

A myPHteam Member said:

Ditto

posted 19 days ago

Blood Clots

Blood Clots

A myPHteam Member said:

Thank you for the hug it mean a lot

posted about 1 month ago

Are A Lot Of Folks On Oxygen?

Are A Lot Of Folks On Oxygen?

A myPHteam Member said:

RonKleiber dx is an abréviation for diagnosis.

posted about 2 months ago

Exercise

Exercise

What are considered safe exercises to do? I walk and ride bike. I’m looking for more exercises.

A myPHteam Member said:

I absolutely loved doing water aerobics but the place I had to go to shut down the classes. I joined another club, but the only time they had w.a. was… read more

posted 24 days ago

Irinac1128

Irinac1128

What is CTEPH?

A myPHteam Member said:

Rina1128
BP is blood pressure

posted about 1 month ago

Medications You Take

Medications You Take

I need your advice on medications you are taken My Doctor gives me 2 mg Adempas three times a day and 10 mg Opsumit once a day. Looks like it’s does not work for me
My pressure is going up but she does not want to change medication. Does any of you take such medications as well ?

A myPHteam Member said:

Yes two budesodine a day. Keeps fluid at bay. I also take montelukast.
Am on 3 lyrics oxygen.

posted 2 months ago

Is This Controllable With Medication?

Is This Controllable With Medication?

I have not been diagnosed by a Dr but have been tested for everything under the sun. Hospital 3 times in one day. I'm frustrated there must be something for this breathing issue.

A myPHteam Member said:

Thanks
Since finding this group I've discovered information. I'm getting tests done and pray I'm seeing the right doctor.
Hugs
Barbara

posted about 1 month ago

Does Anyone Else Find Yourself Coughing All The Time For No Apparent Reason? I Am So Tired Of Coughing.

Does Anyone Else Find Yourself Coughing All The Time For No Apparent Reason? I Am So Tired Of Coughing.

Along with the coughing I also choke on food a lot more lately.

A myPHteam Member said:

Monti. Welcome to my team. We all care and support you. Ask your Dr why you are choking on food. Maybe your throat could be inflamed

posted 1 day ago
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