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Pulmonary Hypertension

Questions + Answers

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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Rheumatoid Arthritis

Rheumatoid Arthritis

A myPHteam Member said:

Why, if I could ask? I thot I took that was younger. Not sure now..looked up. Anyway, these meds help you with symptoms now and help prevent or slow… read more

edited, originally posted 2 months ago

PAH

PAH

My son has PAH and has a very aggressive behavior. Is this normal?

A myPHteam Member said:

Maybe your son feels he's lost control. Everyone trying to do and help might make him feel helpless. My family was trying to help, but only making me… read more

posted about 2 months ago

I Have Extreme Dizzyness Upon Walking And Standing

I Have Extreme Dizzyness Upon Walking And Standing

Does anyone else have extreme dizzyness on standing and walking. Mine disappears if I lay done flat. I have stage 4 emphasema a blood clotting problem which is hereditary I take eliquis for that and trelegy for my emphasema.

A myPHteam Member said:

Dix anyone get a second opinion

posted 2 months ago

Treatment

Treatment

What are some of the medications we can take?

A myPHteam Member said:

I am taking Tyvaso. Just started on it so don't know if it is helping or not yet.

posted 18 days ago

Can You Keep In Touch W Me For The Support?

Can You Keep In Touch W Me For The Support?

Just doing my stair steps takes my breathe away but then some days i can do alot more. Is this normal for ph? And what happens to cause this?

A myPHteam Member said:

Judy. We are here to love, support and encourage you. Reach out anytime, we are here for you....... How have you been feeling? Love Gwen

posted about 1 month ago

Fatigue Shortness Of Breath And Weight Gain With PH

Fatigue Shortness Of Breath And Weight Gain With PH

Since being diagnosed with PH a little over a year ago I find myself constantly tired and almost always short of breath, even when doing simple things like tying my shoes, climbing stairs getting out of a chair short walks among other things. Sometimes I even feel short of breath when just sitting at my office? Once I started using my CPAP machine, it seemed to help, but now that I've been using it for almost a year, it doesn't seem to be making much of a… read more

A myPHteam Member said:

Thank you for that information Vicdon.

posted 15 days ago

Does Anyone Else Experience Severe Pain Upon Standing?

Does Anyone Else Experience Severe Pain Upon Standing?

Does anyone else experience severe, excruciating pain every single time they stand up? It is followed by severe shortness of breath. Nitroglycerine does not help it. The pain is in my upper diaphragm, just slightly below the breast line, which I've been told is still considered chest pain?

A myPHteam Member said:

I wouldn't want to be the dr planning your treatment. :)

posted about 1 month ago

PAH Clinical Trials

PAH Clinical Trials

Has anyone been on or is participating in a clinical trial for PAH? If so, did they work well for you?

A myPHteam Member said:

Hmalohmery good morning
Thanks for the hug. Most appreciated. Hope your day goes well. Hugs and prayers.

posted 3 months ago
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