Thanks ChristineS for the link to read more. It helped me a lot. I also have hyperthyroidism which could also play a part in what I’m experiencing. My grandmother use to say, “If it’s not one thing… read more
PAH just over a year no other health conditions. Heart through medication is doing well the numbers are good but my breathing is worse my doctors can't figure it out. 2 mins into my walk test my oxygen drops to 77% but they don't no why. Anyone else experience this?
I try to stick to 1.5litres a day
My spouse is sleeping more n more. Its very hard to plan a dinner or anything around this. Should I work around this sleeping pattern of stick to schedule? Also my spouse is in an advancd condition of PH is this why there is more sleeping needed?
As PH advances and your spouse struggles more, fatigue worsens, and more sleep is common. It takes a lot of unconscious energy to breath. This is especially true when breathing is labored to the point… read more
It is truly amazing how pets know or sense something is wrong and just stick by you. Yes, I have PH and it appears my dogs know when I have bad days. I had cervical spine surgery and because I had to… read more
I agree, it sounds like you fall into the Group 1 category or PAH. What is the cause of your PH?
I found that there are a lot of options for clinics for PH, but would like to find someone that has really studied PAH. I am will to go anywhere in the US.
I ended up making an appointment at the Mayo Clinic in Rochester MN. They are getting me in in 5 Weeks.
What’s the highest pressure you’ve heard of. I’m at 170, all the pills they tried made me anemic and I had to go off blood thinners. Said there’s nothing else they can do.
It’s the pressure in your lungs also ma show on the echo as 50mm
EP procedure found paralysis of diaphragm on the right side. Diaphragm did not respond to direct stimulation of phrenic nerve.
I was unaware of paralysis, but have the most ridiculous time trying to do diaphragmatic breathing. I had a sniff test done at one time and was told that it was normal. This was an unexpected finding… read more
My mom has copd and pulmonary hypertension. I am her care giver..I am pleading for anyone who knows are has found a sucesssful treatment, that has given you or a love one relieve to please share it with me...Please. Thank you.